Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Kyle Dine and Friends | DVD Review


I posted a review of Kyle Dine’s DVD on Amazon, and wanted to share it here…

Kyle Dine is an incredibly talented and extremely creative children’s entertainer.  He also wields the utmost authority on living life while coping with food allergies as he has multiple food allergies himself and is a successful world-travelled musical educator.

These expertly crafted videos are full of incredibly fun and catchy age-appropriate songs and lessons about having food allergies.  How to avoid your trigger foods, hand washing, always carrying your auto-injector, and how to quickly reach out for help if necessary are just some of the topics not only touched upon but driven home by Kyle and his puppet friends.  

As an adult with a severe food allergy I am so glad that this type of resource is available for the ever-growing “club” of the food allergic.  As a parent of a child with food allergies, this is an invaluable tool to help teach a toddler turning into a pre-schooler about the importance of not eating food unless it’s OK’d by mommy or daddy, and for her to let us know immediately if she is having a reaction.  Luckily she loves to wash her hands, so we’ve got that covered.  These lessons are delivered in the fine tradition of children’s programming like Sesame Street or Mr. Rogers, and they work.  Both of my kids were moving to the music upon our first viewing!

I not only recommend this for food allergy families, but I would say that extended family who may not understand food allergies, your child’s friends and their parents, and organizations like schools, churches, camps, & clubs could all benefit from the knowledge and entertainment provided by this set of DVD’s.  This programming ought to play on constant rotation in your family’s pediatric allergist’s office waiting room.

This can and will serve as an incredibly fun way to open the door to creating a fun, safe, and confident approach to living with food allergies.

Kyle Dine & Friends: Allergy Awareness with Songs, Puppets, and Games

Kyle Dine & Friends

 

Separate is indeed not equal! Food allergies & bullying. |-o-|


I haven’t blogged about food allergies lately, so it’s time.  Luckily the other day, a great post popped up in Google Reader, with a striking headline:  We Have Come Too Far To Forget, Separate Is Not Equal

I happen to consider the author Thanita a Twitter friend, and a proud member of the #FoodAllergyMomArmy.  It’s got a great message.  Obviously the first thing it brings to mind is racism, but it can now be applied to any group facing discrimination.

As I’ve said before… I’d like to see any changes brought forth from a consumer side of view, not a legislative one.  When we’re dealing with schools, parents really need to get involved and not just the parents of the food-allergic children.  Legislation in this area may be the best answer as far as schools are concerned.  After all, it’s a gub’ment institution, right?  (Things like the School Access to Emergency Epinephrine Act are extremely important to protect food-allergic kids, as well as any that may have reactions to thinks like latex or bee stings.  Pennsylvania now seems like it’s on top of things.)

All in all, some earnest thinking about the whole thing will bring forth a hopefully easy decision:

When other parents tell the family of the anaphylactic child to just “home-school, it’s safer, we’re looking out for your best interest”, it’s a joke. Separate Is Not Equal.

When a child is forced to peer over a sea of smiling, laughing, socializing children, all the while sitting on a separate table alone, “for his/her safety”, it’s Separate and Not Equal.

We have to ask ourselves, how far have WE come since the 1950’s? Would we be doing this to a child with autism? To a child in a wheelchair? To a child with dark skin? If the answer is never, then do not do it to a child with an anaphylactic disability.

Think about that.  There’s a lot of buzz about bullying lately, & it certainly falls on food-allergic kids.  For an example, read this awesome article by another #FoodAllergyMomArmy member and cool Twitter friend Libby about bullying: Bullies, Food Allergies and The Force

This is heavy:

By the way, just one mistake can be fatal. Have I mentioned the shocking levels of stress in parents of children with food allergies?

So this morning I dressed my son in one of his Star Wars t-shirts and talked to him about Katie and how it’s ok to be different and not ok to tease or bully someone else. I packed an allergen free lunch, gave him hugs and kisses, told him I loved him and sent him off to school with a prayer that he would come home safely, something I never take for granted.

To the kids with food allergies and their parents, may the force be with you. You’re going to need it.

One mistake can be fatal.  Let’s all help make sure it doesn’t come to that.  These food allergy moms & dads (& brothers & sisters, etc.) are badass, I tell you.  It takes courage to muster up the confidence to put together a safe plan for your kid(s), and to be strong for them when you probably just want to break down & cry about it yourself sometimes.

Food Allergy & Anaphylaxis Network

Prevent Bullying

It’s up to all of you reading to inform schools, restaurants, and everyone that you’re not going to exclude yourself or your kids from society or live in fear from your food allergy.  It’s up to you to be ever-vigilant and cautious, but it’s all so up to you to not back down or let your kids be ostracized for being different.

Now, where can I get an Epi-pen case that looks like a lightsaber?

Lightsaber

Thanks to everyone who donated for the Food Allergy Walk!


Thanks to everyone who donated to me for the Food Allergy Walk on Sunday. The Food Allergy & Anaphylaxis Network appreciates your donation, as do I!  I have smashed my original $300 goal, and now exceeded my current $500 goal.  I couldn’t have done it without the awesome support from friends & family!

If you were thinking of donating, but hadn’t yet… I’d like to still smash that goal, or you can donate to the lovely Bethany and help her reach her goal!

Message from FAI and Research America – Food allergy action required!


From: Food Allergy Initiative <info@faiusa.org>
To: Me <me@my.email.address>
Sent: Tuesday, July 19, 2011 12:30 PM
Subject: Message from FAI & Research America

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Finding a cure for life-threatening food allergies. July 19, 2011
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Write Your Congressman Today!
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Fight for the Future of Medical Research!
Dear Friend,FAI has joined forces with Research!America, the nation’s largest nonprofit advocacy alliance committed to making health research a higher national priority. We’re fighting for strong, continuing support for life-saving research at the NIH.
Please join us today by writing your elected officials. You’ll find two letters on our site. The first allows you to voice your support for food allergy research, and the second, provided by Research America, allows you to voice your opposition to budget cuts at NIH.
A strong government-private partnership is the key to finding a cure for food allergies. We’ve worked too hard and come too far to fail now. As the world’s largest source of private funding for food allergy research, FAI urges you to write your elected officials today. Millons of Americans–including 12 million food allergy sufferers–are counting on us.
Sincerely,
Mary Jane Marchisotto
Executive Director, FAI
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Our Mission

FAI supports research to find a cure for life-threatening food allergies; clinical activities to improve diagnosis and treatment; public policy to increase federal funding for research and create safer environments for those afflicted; and educational programs to make the hospitality industry, schools, day care centers, and camps safer.

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