Tag Archives: allergens

Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Audio

Food Allergy Walk Pittsburgh 2016 (Asking for a $10 donation.)


It’s almost time for the FARE food allergy walk in Pittsburgh again this year.  Each year, I ask for your help before the walk in raising money for food allergy research & awareness/education.  This year the walk will be on Sunday October 2nd at the Pittsburgh Zoo.

I know money is tight.  I know there are a million causes worth donating to.  I know there are walks for everything these days.  So, I understand what I’m asking when I ask you to consider a donation to FARE in support of our walk.

My shellfish allergy is pretty severe, but I have learned to navigate life successfully with it.  It would be nice for people to not have to worry about these things some day.  Molly has recently outgrown an allergy to eggs, greatly in part to incredible pediatricians, local allergists involved in the FARE walk, and their advice as it is informed by the latest research and techniques.  There is still a chance that either of my kids could develop allergies later.  My shellfish allergy didn’t really manifest until I was in 3rd or 4th grade.

My plea isn’t the standard. I know not everyone has $50 or even $25 to give to a cause that may not even affect their lives directly.  I’m asking for $10 to go to FARE (Food Allergy Research & Education).  I’d rather get a bunch of small donations from a whole lot of people.

This is how my friends/followers/whatever break down on social media, and what the total would amount to if everyone managed to donate $10:

All of those except Tumblr are well over our team goal of $600.  All of them total would be $28,570.00.  I know there’s some obvious overlap, so that’s not a real number if everyone only donated $10, but it’s also not ridiculous.

Donations are tax deductible, you can opt for a receipt when you donate online, and you can read about what your donation will be used for.

If you’re reading this and don’t have $10 to spare, or your donation money is going to a cause closer to your heart, that’s cool too.  Just reading raises awareness and that is also extremely important.  You can find all kinds of food-allergy related rants and information here on my blog.  Sharing on your social media platform of choice would be really cool too.

FARE Walk For Food Allergy 2016 - Carroll Family Team Page

FARE Walk For Food Allergy 2016 – Carroll Family Team Page

Thank you for your time and your consideration.

It’s Food Allergy Awareness Week!


It’s Food Allergy Awareness Week again, and guess what?  Food allergies and the food-allergic are still here… and we’re still allergic.  We’re still informing you about cross-contamination and safety.

A song from Kyle Dine:

Some #FAAW tweets from my #FoodAllergy tweeps:

A lot of people push for government recognition or regulation.  I look for a consumer push, and recognition from the general populace.  We can all agree that we need to convey the seriousness of cross-contamination with foods… at schools, in restaurants, at home… and everywhere.

Learn more about what you can do here:  Raising Awareness, Making an Impact

Check out my Food Allergy related posts here:  Allergies

Photo of skin test about 15 minutes after the ...

Photo of skin test about 15 minutes after the application of allergens and the scratching. (Photo credit: Wikipedia)

I hope to do the Food Allergy Walk in Pittsburgh again this year.  Perhaps I can pull together a team or get even more sponsors than last year?  Your donations were incredible last year.

Also… don’t forget, Adults can have food allergies too.  We don’t “grow out” of them.  We can’t “just pick it off” or “have just a little”.  It’s a very serious thing.

So, how are you celebrating Food Allergy Awareness Week?

Get a proclamation from your state governor that says “diarrhea”!


Food Allergy Awareness Week

FAAW

So, Food Allergy Awareness Week 2011 is still a little far off, but at the same time it’s quickly approaching.

Personally, I’m all about pushing it from a consumer-level rather than having some government mandates handed down to reluctant (and perhaps allergen-ignorant) business owners.

But, at the same time, I see the monumental importance of government recognition.  It spreads awareness and gives hope to those of us trying to express the validity and seriousness of food allergies and anaphylaxis.

So, I urge you to do your part, and write to the governor of your state asking for them to declare recognition of Food Allergy Awareness Week.  From the FAAN website:

Take ActionFood Allergy Awareness Week: May 8-14, 2011

Ask your Governor to Issue a Food Allergy Awareness Week Proclamation

Issuing a Food Allergy Awareness Week (FAAW) proclamation is a great way to help raise awareness in your State!

Ask your Governor to declare May 8-14, 2011 Food Allergy Awareness Week!

In 2010, FAAW was recognized in a RECORD 37 STATES! Let’s break this record in 2011!

As of Feb 8, 2011, only one proclamation has been issued (Minnesota). Only 49 more states to go!

So, what are you waiting for?  It only takes a few minutes, and you may even get a nifty official-looking document from your governor with a state seal that has the word “diarrhea” on it.  I mean, how funny is that?


Subway | Eat Death™


I’ve recently renewed my dialog with Subway, sparked by the news of them rolling out a gluten-free menu.  Here’s how it’s going down:

From:

ERiC AiXeLsyD <world.and.lunar.domination@gmail.com>
Date: Tue, Jan 25, 2011 at 11:16 AM
Subject: Gluten-Free Menu Options in Texas?
To: Paula Gomez <gomez_p@subway.com>, Rob Searfus <R.Searfus@sfaft.org>, Mack Bridenbaker <m.bridenbaker@sfaft.org>, Christine Sumecki <c.sumecki@sfaft.org>, Subway Customer Care Team <asksubway@subway.com>, “B. Pingarron” <b.pingarron@sfaft.org>, “M. Luby” <m.luby@sfaft.org>, “Anna Marie Seeley (Customer Care Representative)” <seeley_a@subway.com>, Kevin Kane <kane_k@subway.com>

Hello Friends at Subway,

I write to you today because we have had a dialogue going in the past about food allergies and cross-contamination that I would like to continue.  I have recently read a few articles online informing the masses that Subway plans to roll-out some gluten-free menu options in the Dallas & Tyler Texas markets soon.  If you would like to read the articles in question, here are some links:

While I would like to be able to applaud this effort, I also find it quite frustrating.

I am quite proud of Subway as an organization when I read such responsible things like “The baked goods will arrive pre-packaged and individually wrapped. Employees will be educated on how to cut the bread using a pre-wrapped knife to avoid cross contamination.”  I mean, really… this is a novel idea and a stellar effort as well as great news for Celiac afflicted potential Subway customers.  Certainly lines like “Also, to further avoid cross-contamination, that same Sandwich Artist will prepare the order from beginning to end, ensuring a 100-percent gluten-free meal” offer a level of comfort to those who must dine gluten-free.  While other restaurants have offered gluten-free menus, you seem to understand that a knife that cuts a regular bun cannot also cut the bun of a gluten-free selection.  This would, I imagine, be quite a worry for a wheat-allergic or Celiac person.  I can imagine this scenario quite well, actually.  You may remember my past missives expressing my allergy to shellfish (and more specifically to your “seafood” sub offering).

This is where my frustration sets in.  I have written to you on multiple occasions expressing the frustration for not only my shellfish allergy, but all of the “top 8”; Milk, Eggs, Peanuts, Tree Nuts, Fish, Shellfish, Soy, & Wheat.  Why have you picked this opportunity to only concentrate on the wheat?  There are others too… I know of people with tomato and pepper allergies that would be thrown into the same anaphylactic shock that I would given I were to take a bite of unknowingly deathfish-laiden lunchmeat.  While you seem to understand the importance of a gluten-free knife… what about a cheese-free, tomato-free, and shellfish-free knife?  Perhaps you have forgotten my previous letter with a few colorful illustrations of the contaminated knife issue.  I will repost here for your convenience:

Then we have the community knife.  If one were to cut someone’s seafood sub with that knife, wipe it off, then cut my sub, there are STILL allergens on that knife, enough allergens to kill me.  Do you want me to be thrown in to an Anaphylactic fit?  I doubt it.  Well, at least, I hope not.

Think about this – do you share your toothbrush with everyone in your household?  Would you with everyone in your office?  Would you share it with everyone that you pass on the way to work in the morning or with everyone who’s eating lunch with you at the same place where you’re choosing to dine?

Yes, it sounds gross, but those potential germs that you’re no doubt currently horrified of are the same as the very real allergens that will most certainly throw me into instant death.

If that didn’t do it for you, imagine I put a giant dried dog turd on the sandwich board, cut it in half, wrapped it, wiped off the knife [with a re-used dishrag type cloth], and then cut your sandwich.  By Subway’s current logic, that knife is clean and contamination free.  This is most certainly not a pretty picture to you, my friend.  Is it?

Does any of this ring a bell?

Also, I have received conflicting reports on how such issues are currently handled or have been handled in the past.  One reply states…

The Company policy directs our independent restaurant owners / operators to take all necessary precautions to prevent the possibility of cross contamination. This includes the policy of washing all utensils and containers after each use. Each restaurant is independently owned and operated and is the responsibility of the franchise owner to implement and enforce the policy.

Which seems to conflict with yet another reply…

I have gone ahead and copied our Training Department so that further lessons can be addressed with owners and their employees on proper handling.

And, the latest information according to the QSRWeb.com article is that “Sandwich Artists in those two markets will be trained on how to cut the roll with a pre-wrapped knife for one use only.”  So, have they been trained in allergies in cross-contamination already, or not?  Color me confused, my friends.

I’d feel safer if the seafood concoction wasn’t anywhere near the meat & cheese where it currently sits.  I’d also feel safer if the same knife wasn’t used to cut all of the sandwiches, and the same dishrag-type towel wasn’t used to wipe off the knife in random intervals between sandwich slicing.  I’d feel safer if all the sandwich artists, managers, and owners were trained on allergens, cross-contamination, and the seriousness of anaphylactic shock.  I’d feel safer if all stores contained a first aid kit complete with an epi pen and clear instructions for its use.

Why should the Celiac-afflicted feel safer, but the rest of us with deadly food allergies should not?  I look forward to your response, your insights, and how you plan to move forward regarding all potentially deadly allergens and how they are to be handled in your stores.  Thank you once again for your time, I hope to hear from you soon.

Inquisitively,
-ERiC AiXeLsyD

P.S. – I was wondering, when you work in an office for Subway, do you have an in-office Subway in which the employees receive (or make) their own lunch?  Or, is there a Subway nearby where you get free or discounted food?  Or, are you all too sick of Subway to eat there?

And I got this back…

From: Searfus, Rob <R.Searfus@sfaft.org>
Date: Fri, Jan 28, 2011 at 4:31 PM
Subject: RE: Gluten-Free Menu Options in Texas?
To: ERiC AiXeLsyD <world.and.lunar.domination@gmail.com>

Hello Eric,

My apologies for not replying earlier, I was traveling and in meetings most of the week, (as well as attending to some family business).  But enough of the excuses.

Forgive me for not having more product answers, but I’m simply a field marketing representative out here on the west coast.  I have inquired with our R&D department to try and get the answers to your questions.  No replies yet, but this week has been tough for me to get a hold of anyone on the east coast due to the severe winter storms that they have been having (offices closed for at least a couple of days.)

I’ll follow up by e-mail when I get any answers for you.

Thanks, and BTW, what part of the US to you hail from?

Rob Searfus
Field Marketing Manager
Subway® Franchise World Headquarters
16337 SW Leeding Ln
Tigard, OR 97223
Cell: 503-954-5479
Toll Free: 1-800-888-4848 x 4089
Fax 503-579-6715
e-mail: searfus_r@subway.com

IMPORTANT CONTACT INFORMATION CHANGE:  PLEASE NOTE MY EMAIL ADDRESS HAS CHANGED TO searfus_r@subway.com.  Please update your address book to reflect this change.  We are undergoing a technology transition.  During this transition, you may still receive emails from the “sfaft.org” address.  This is not an error, but please enter my new subway.com email address when sending emails.

So I wrote this…

From: ERiC AiXeLsyD <world.and.lunar.domination@gmail.com>
Date: Sat, Jan 29, 2011 at 4:17 PM
Subject: Re: Gluten-Free Menu Options in Texas?
To: “Searfus, Rob” <R.Searfus@sfaft.org>

Thank you Rob,

I had actually wondered if anyone would reply.  I had an email chain going before with a Ms. Paula Gomez & Ms. Ana Seely… but they have been short replies and my main questions have gone unsanswered.

I’m in Pittsburgh Pennsylvania.  Thanks for your time, I hope to hear from your colleagues soon!

-Eric

But in the mean time, I made some pretty pictures.  I can’t decide which one I like the most.

Which one do you like best?

Prepping for Food Allergy Awareness Week 2011


Okay, so I’m on a roll this morning.  That Subway stuff struck a nerve.  It reminded me that I would like to have more consumer-driven responses to food allergy issues, and less government mandates.  Food Allergy Awareness Week is not for a few months (May 8-14, 2011), but it doesn’t mean that you can’t start getting ready now.

I just wrote to the Food Network, requesting some Food Allergy Awareness.  I used their contact form, and this is what I had to say…

I’m a big fan of all the Food Network shows.  I’d love to see an Iron Chef battle where they can’t use any of the “top 8” allergens.  I am allergic to shellfish, and always recoil slightly when it’s a lobster or crab battle… or when the inevitable prawn works its way into a dish.  There is a Food Allergy Awareness week every May.  It would be great timing for such an event… and really help the allergy awareness and cross-contamination cause.  There are MANY food-allergic foodies out there!

I’m sure you’re aware that the top 8 allergens are Milk, Eggs, Peanuts, Tree Nuts, Fish, Shellfish, Soy, & Wheat.  TO have an Iron Chef battle where they ahd to prepare meals without any of the top 8 allergens would be truly epic, and help show others out there that there ARE indeed alternatives & work-arounds when dealing with a life-threatening allergy.  Food allergy awareness week this year will be May 8-14, 2011.

Thank you for your time, I hope to hear your thoughts on this matter!

-Eric

I’d like to ask that you also write your own letter or email.  And, why stop at one? Please, share with me other places where you think we ought to write, and I’ll write to them too!

I’ll definitely be writing more, perhaps armed with statistics like the following (from Top8Free.com):

Prevalence of food allergies in the United States

Ninety percent of food allergies in the United States are caused by eight foods:  Milk, egg, soy, peanuts, tree nuts, wheat, fish, and shellfish.  This website is dedicated to a diet free of these allergens.  Of course, it is possible to be allergic to just about any protein.  In Japan, rice allergy is one of the offenders.

Just to give you a sense of how many kids are suffering from food allergies today, here is a table of the most common food allergies.  This does not count children with milk-soy protien intollerance or Celiac disease, only children with Ig-E mediated food allergies.

Percentage of young children with allergy to:

  • Milk 2.5%
  • Egg 1.3%
  • Soy 1.1% (There is little agreement on this number.  Estimates range from 1 to 5%)
  • Wheat 1.0%
  • Peanut 0.8%
  • Tree nuts 0.2%
  • Fish 0.1%
  • Shellfish 0.1%
  • Overall 6 to 8% of population

Percentage of adults with allergy to:

  • Shellfish 2.0%
  • Peanut 0.6%
  • Tree nuts 0.5%
  • Fish 0.4%
  • Milk  0.3%
  • Egg 0.2%
  • Soy 0.2%
  • Overall 3.7%

Source: Hugh A. Sampson, MD. “Update on food allergy“, Journal of Allergy and Clinical Immunology, May 2004

While writing to politicians does gain some inroads, there are other productive avenues to explore.

 

Dunkin’ Donuts on Allergy Signage… [Case# 7577485]


Did you see my allergen warning sign photos from Dunkin’ Donuts and Giant Eagle?  I wrote to both of them to thank them for displaying the signs.  Giant Eagle was the first to reply, and now I’ve heard from Dunkin’ Donuts.  I submitted the following via webform:

Hello,

I was in the Dunkin’ Donuts in Dormont this weekend, and I was pleasantly surprised to see this allergen warning sign:  http://i127.photobucket.com/albums/p139/worldandlunardomination/Signs/p_00527.jpg

As someone who has a severe allergy, I found this to be a responsible and proactive decision on the part of Dunkin’ Donuts, and I just wanted you to know that it’s an appreciated gesture.

Thankfully, my allergy isn’t to peanuts, or I’d most likely go nowhere near your fine establishments, much like I currently avoid Red Lobster and Long John Silver’s due to my shellfish allergy.

I did, as the sign suggested, go to https://www.dunkindonuts.com/aboutus/nutrition/ in order to see allergen information for some of my favorite menu items.

I also see that you have a blanket *.pdf available showing nutrition information for all of your products.  Do you have something like this for allergens in all of your products?

It’s a red flag for me that you have “Crustaceans” on the list, and even expand upon it under the data table with “Crustaceans include, crab, crayfish, lobster, and shrimp.”

Do any of these creepy little sea-bugs show up in any of your products?  My curiosity is piqued, my friends!

Thank you for your time, and for responsibly posting allergen warnings.  I look forward to hearing from you!

Not dead yet,
-Eric

Ant they wrote back…

From:customerservicereply@dunkinbrands.com” <customerservicereply@dunkinbrands.com>
To: me@my.email.address
Sent: Tue, October 12, 2010
Subject: Case# 7577485 – Dunkin’ Donuts

Hi Eric,
Thank you for taking the time to contact Dunkin’ Donuts.
To answer your questions regarding allergens, the stores should have a printed document available behind the counter that will tell you if any of the allergens required to be listed by the FDA are in our products.
If you call our Consumer Care line, they can tell you as well.
As far as the shell fish listing on our forms, that form is required by the FDA. We have to show it on the form but you won’t see it checked off for any of our products.
I hope this answered your questions.
You can reach us at 800-859-5339 M-F 8:30AM to 5:00PM EST.
At Dunkin’ Donuts we value our customers and are committed to making your visits to our stores a pleasant experience.

Thank you and have a great day.

Louise
Customer Relations Associate

Reference # 7577485

It’s interesting how people intemperate the laws… I certainly don’t see standardized allergen information on all food-related websites. I’m glad that companies like this are at least trying to be active in their warning, and hope it’s not just a “CYA” measure.

It’s also interesting to note that I received a the same  exact reply to this message at least 13 times, all with the same case/reference number.  Weird.

https://aixelsyd13.files.wordpress.com/2010/10/allergy-sign-d-donuts-p_00527.jpg