Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

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Last minute plea for Food Allergy Walk donations!


  • My Goal: $600.00
  • I Have Raised: $264.75

I’m 44% of the way there with 2 days left for your donations! If 34 people donate $10 each, I can exceed my goal. Help me out with my goal & help a good cause?

Even if you can’t donate, please just share the link like crazy?  Thanks for your time and your consideration.

http://www.foodallergywalk.org/goto/aixelsyd13

44%

Read more about it here:

2012 FAAN Walk for Food Allergy
2012 FAAN Walk for Food Allergy
Related Articles
Food Allergy & Anaphylaxis Network

Food Allergy & Anaphylaxis Network (Photo credit: Wikipedia)

Really, I haven’t forgotten.


Haven’t been blogging much lately, but I have a new job, am trying to get mazes done when I can, and I’ve been researching several potential purchases to help with said job online.  I will no doubt get back to blogging once things level out.

Any advice on which Epipen leg pouch I should get?  The OmaxCare™ LegBuddy™, the Allergy Essentials Epissentials™ Epipen Holder, or something else?

OxmaCare™ LegBuddy™

OxmaCare™ LegBuddy™

Epissentials™ Epipen Case

Epissentials™ Epipen Case

Medipouch Leg Wrap

Medipouch Leg Wrap

I finally got my prescription renewed, & got a double-pack. Thankfully I’ve never had to jab myself with one.  I did try the practice one a few times.  So, what do you do with your expired ones?  Does anyone take donations or recycle them?

Help Me Reach My Goal!

Help Me Reach My Goal!

Don’t forget, I’ll be doing the FAAN Walk For Food Allergy on Sept. 16th in Pittsburgh, and I could certainly always use more donations!  I’m only about a third of the way to my goal this year, so I can certainly use some help.

I’m also always trying to figure out how to come up with cash to buy more goofy guitars, and Ernie and the Berts is writing more stuff & hoping to record ASAP.  I try to catch other local & national shows when I can.

Of course, I’m also spending time with the wife, as we have some fun stuff coming up… like weddings, hopefully the Renaissance Fair soon, the Food Allergy Walk, a camp service for church, and more.

I’m still not Kmart or McDonald’s, but I do have some blog feedback that I need to address.

I might have some more stuff asking opinions in the next few days.

2012 FAAN Walk for Food Allergy in Pittsburgh


2011 Food Allergy Walk Pittsburgh - Appreciation Certificate

Can we do it again?

Well, I’m doing it again.  My wife & I had a blast last year, it was cool to see so many others out there to support their friends or family members with food allergies, or even for themselves.

Most importantly, we all helped raise money for Food Allergy research & awareness.

Last year, I exceeded my $300 goal & made over $500 & was one of the top individual earners.  This year, I’d like to break $600 or higher, and I need your help to get there.

Goal: $600.00

Goal: $600.00

So please, consider sponsoring me in the walk.  Your tax-deductible donation can be made easily online.  Just go to the following url & click the “Donate” button:

I’d also appreciate if you could spread the word by sharing that url or this blog.

I have just over a month to get these donations in, so let’s get the ball rolling!

Here’s a little bit of information about FAAN & how your donations are going to be used:

About Us

Founded in 1991, the Food Allergy & Anaphylaxis Network (FAAN) is the world leader in information, resources, and programs for food allergy, a potentially life-threatening medical condition that afflicts as many as 15 million Americans, including approximately 6 million children.

A nonprofit organization based in Fairfax, Va., FAAN has approximately 25,000 members in the U.S., Canada, and 58 other countries. FAAN provides information and educational resources about food allergy to patients, their families, schools, health professionals, pharmaceutical companies, the food industry, and government officials.

For more information about FAAN, including additional food allergy facts and statistics, please visit www.foodallergy.org.

Mission

To raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis.

Why We Walk

  • We walk to fund food allergy awareness, advocacy, education, and research programs.
  • We walk to provide understanding, hope, and an opportunity for those affected by food allergies to network.
  • We walk to save a life!

Over the years, FAAN has been at the forefront of progress in food allergy awareness, advocacy, education, and research. Findings from research studies have been used to change federal and state laws, improve school policies, raise public awareness, improve the daily lives of individuals with food allergy, and provide education for patients, caregivers, and health professionals. Funds from programs like the FAAN Walk for Food Allergy support FAAN’s efforts to achieve these feats.

FAAN continues to lay the groundwork for a brighter future for those with food allergies.

How FAAN Uses Your Contributions

FAAN uses contributions to fund its education, advocacy, research, and awareness efforts. Eighty-one cents of every dollar is spent on innovative research and programs that help give families struggling with food allergies a fighting chance. Since 2004, FAAN has funded more than $4.6 million in research. Education remains the single most important component of staying safe while living with food allergies. Since 2006, FAAN has funded nearly $175,000 in Community Outreach Grants to local support groups throughout the country.

Got it?

You can also sign up to walk in Pittsburgh, or in your area if you’re interested. We could also use local sponsors, volunteers, and much more help.  Check out the Pittsburgh page for details!

Thank you for your time & considering a donation.

2012 FAAN Walk for Food Allergy

2012 FAAN Walk for Food Allergy

First-Ever Allergy Awareness Night at PNC Park, Friday, August 10, to Raise Understanding of Life-Threatening Allergies


PNC Park

PNC Park (Photo credit: Wikipedia)

I think I just got a press release.  How neat is that?  Ha ha.  I feel like an official Food Allergy news outlet.

I sure never thought I’d be blogging about baseball.

Please, feel free to pass along all of this information as soon as possible.  August 10th is quickly approaching!

From: Matthew Price <MPrice@ccapr.com>
To: me@my.email.address
Sent: Tuesday, July 31, 2012 1:53 PM
Subject: First-Ever Allergy Awareness Night at PNC Park, Friday, August 10, to Raise Understanding of Life-Threatening Allergies

Dear Eric,

I thought you and readers of your blog might be interested in this story about an upcoming peanut-free baseball game.

The Pittsburgh Pirates can add another tally to the “win” column with a victory for fans with life-threatening peanut allergies when the team hosts its first-ever Allergy Awareness game at PNC Park on August 10, 2012. The game is sponsored by Mylan Specialty L.P.

Baseball games pose a significant challenge for many families living with life-threatening allergies, because many fan-favorite foods, including peanuts, can trigger anaphylaxis, a life-threatening allergic reaction. Food allergies are the most common cause of anaphylaxis and affect about one out of 13 children in the United States. Insect venom, latex and medication can also cause a life-threatening allergic reaction.

Pittsburgh Pirates Allergy Awareness Night At-a-Glance:

WHAT: The Pittsburgh Pirates partner with Mylan Specialty L.P. to host the first-ever Allergy Awareness night at PNC Park.

WHEN: Friday, August 10, 2012 – 7:05 p.m. ET

WHERE: PNC Park, 115 Federal St, Pittsburgh, PA. Click here for directions and parking information.

WHO: Pittsburgh Pirates vs. San Diego Padres.

TICKETS: Order tickets for the peanut-controlled section through 1-800-BUY-BUCS or www.pirates.com/allergyawareness.

The full press release is copied below for your reference or is available at http://www.prnewswire.com/news-releases/mylan-specialty-lp-partners-with-the-pittsburgh-pirates-to-sponsor-pnc-parks-first-allergy-awareness-night-164421296.html.

Thank you,
Matt
Matthew Price
Chandler Chicco Agency
T. 212.462.8710
F. 212.463.6770
The Holmes Report’s “Healthcare Agency of the Decade”
www.ccapr.com

*******************

Mylan Specialty L.P. Partners with the Pittsburgh Pirates to Sponsor PNC Park’s First Allergy Awareness Night

  Fans with Life-Threatening Peanut Allergies Able to Enjoy Night Out Rooting
for Home Team

BASKING RIDGE, N.J. and PITTSBURGH — The Pittsburgh Pirates are partnering with Mylan Specialty L.P., the fully-integrated specialty pharmaceutical business of Mylan Inc. (NASDAQ: MYL), to host the first-ever Pirates Allergy Awareness night at PNC Park on Friday, August 10. The Pirates will reserve a special area of the ballpark for those who have a life-threatening allergy to peanuts, the most common food allergen among children. The Pirates also will provide tips throughout the game to help their fans be more aware of life-threatening allergic reactions, or anaphylaxis.

“Life-threatening allergies are a growing public health problem, particularly among children and teens. In fact, a recent study shows as many as one in 13 children in the U.S. suffer from a food allergy,” said Heather Bresch, CEO of Mylan Inc. “We are proud to partner with our hometown team to help the people of Pittsburgh and their family members with life-threatening peanut allergies experience the fun and excitement of a night out at the ball park.”

Mylan Specialty L.P. is the official sponsor of the Pittsburgh Pirates’ first Allergy Awareness night at PNC Park to take place at the August 10 game against the San Diego Padres. That night, like every Friday home game is a Free Shirt Friday, during which all fans get a complimentary Pirates T-Shirt, with paid admission. To purchase tickets in the peanut-controlled area for this game, please visit www.pirates.com/allergyawareness or call 1-800-BUY-BUCS.

“We are excited to work with Mylan to ensure increased awareness of this important issue, and to help provide a fun experience at PNC Park for our dedicated fans with life-threatening allergies,” said Pirates President Frank Coonelly. “Pirates baseball is one of the hottest tickets in town and we want to take steps to ensure all fans are able to enjoy the best ballpark in America.”

Throughout the evening, fans will be educated about life-threatening allergies. Because anaphylaxis can happen anywhere and at any time, it is important for everyone to be able to identify and avoid their allergic triggers, recognize anaphylaxis signs and symptoms, and understand how to act quickly and appropriately by seeking emergency care when a life-threatening allergic reaction occurs.  In addition, Pirates coach Mark Strittmatter will present a 30-second video about the risks of life-threatening allergies, and encourage fans to visit www.MyAllergySurvey.com.

Pittsburgh Pirates Allergy Awareness Night At-a-Glance:

WHAT: The Pittsburgh Pirates partner with Mylan Specialty L.P. to host the first-ever Allergy Awareness night at PNC Park.

WHEN: Friday, August 10, 2012 – 7:05 p.m. ET

WHERE: PNC Park, 115 Federal St, Pittsburgh, PA. Click here for directions and parking information.

WHO: Pittsburgh Pirates vs. San Diego Padres.

TICKETS: Order tickets for the peanut-controlled section through 1-800-BUY-BUCS or www.pirates.com/allergyawareness.

About Anaphylaxis
Anaphylaxis is a life-threatening allergic reaction that has many possible triggers, occurs quickly, without warning, and should be treated immediately with epinephrine.Symptoms may include hives or redness of the skin, tightness in the throat, nausea, dizziness, breathing problems and/or a decrease in blood pressure. Anaphylaxis can be caused by triggers such as food, stinging and biting insects, medicines, latex or even exercise.The most common food allergens that can cause anaphylaxis include cow’s milk, eggs, peanuts, tree nuts (walnuts, cashews, pistachios, pecans, etc.), fish, shellfish, soybeans and wheat. Epinephrine is the only first-line treatment for anaphylaxis. Epinephrine is a naturally-occurring hormone, also known as adrenaline, and it should be available at all times to patients at risk. Failure to administer epinephrine early in the course of treatment has been repeatedly implicated with anaphylaxis fatalities.

About Mylan Specialty
Mylan Specialty, a subsidiary of Mylan Inc. (Nasdaq: MYL), is a specialty pharmaceutical company focused on the development, manufacturing and marketing of prescription drug products for the treatment of respiratory diseases, life-threatening allergic reactions and psychiatric disorders. The company puts patients first and facilitates efficient, cost-effective partnerships with customers. For more information, please visit www.mylanspecialty.com.

About Mylan
Mylan is a global pharmaceutical company committed to setting new standards in health care. Working together around the world to provide 7 billion people access to high quality medicine, we innovate to satisfy unmet needs; make reliability and service a habit, do what’s right, not what’s easy and impact the future through passionate global leadership. We offer a growing portfolio of more than 1,100 generic pharmaceuticals and several brand medications. In addition, we offer a wide range of antiretroviral therapies, upon which approximately one-third of HIV/AIDS patients in developing countries depend. We also operate one of the largest active pharmaceutical ingredient manufacturers and currently market products in approximately 150 countries and territories. Our workforce of more than 18,000 people is dedicated to improving the customer experience and increasing pharmaceutical access to consumers around the world. But don’t take our word for it. See for yourself. See inside. mylan.com

SOURCE Mylan Inc.

Venezuelan Summer Pirates

Pittsburgh Pirates (Photo credit: Wikipedia)

Am I an official media outlet now?  Ha ha.  I will do my best to spread the word on my humble little corner of the internet.  I really appreciate Matthew’s taking the time to pass this information along.  I know other ball parks have done similar evenings.  Raising awareness is at times an uphill battle, this is an incredible effort by The Pittsburgh Pirates & PNC Park.

So, how about a no shellfish night?  Ah, I stick to Primanti Bros. inside the parks anyway.

Disney does food allergies with the best of intentions.


So, you know how I’m always saying I’d like a push from a consumer level rather than government regulations or mandates regarding food allergies?  This is what I’m talking about:

On our first trip we asked one of the chefs why they do such a wonderful job accommodating food allergic children at Disney World, he said, “We want the repeat business.”  It would be wonderful if other resorts would take this cue from Disney and realize that if they accommodate food allergic children and their families, we will return with pleasure and continue to be loyal customers.

Check out the full article by Lisa Giuriceo on Allergy Eats, it’s honest, inspiring and gives hope.  Someday we’ll be safe.  Someday accidents won’t happen.  I just may have to save my pennies & book a Disney vacation.

Former logo of the Walt Disney World Resort, u...

Sadly, my only dream is to not go into anaphylactic shock.

It’s Food Allergy Awareness Week!


It’s Food Allergy Awareness Week again, and guess what?  Food allergies and the food-allergic are still here… and we’re still allergic.  We’re still informing you about cross-contamination and safety.

A song from Kyle Dine:

Some #FAAW tweets from my #FoodAllergy tweeps:

https://twitter.com/#!/nut_freemom/status/202064341778964481

https://twitter.com/#!/chupieandjsmama/status/202036109222477827

https://twitter.com/#!/susanweissman/status/202084480452788224

https://twitter.com/#!/allergicgirl/status/202010024929800192

https://twitter.com/#!/iknowtiffany/status/202001615715176448

https://twitter.com/#!/FoodAllergyBuzz/status/201990572003704832

https://twitter.com/#!/wegohealth/status/202073874177851393

https://twitter.com/#!/AllergicVegan/status/202112986045874176

A lot of people push for government recognition or regulation.  I look for a consumer push, and recognition from the general populace.  We can all agree that we need to convey the seriousness of cross-contamination with foods… at schools, in restaurants, at home… and everywhere.

Learn more about what you can do here:  Raising Awareness, Making an Impact

Check out my Food Allergy related posts here:  Allergies

Photo of skin test about 15 minutes after the ...

Photo of skin test about 15 minutes after the application of allergens and the scratching. (Photo credit: Wikipedia)

I hope to do the Food Allergy Walk in Pittsburgh again this year.  Perhaps I can pull together a team or get even more sponsors than last year?  Your donations were incredible last year.

Also… don’t forget, Adults can have food allergies too.  We don’t “grow out” of them.  We can’t “just pick it off” or “have just a little”.  It’s a very serious thing.

So, how are you celebrating Food Allergy Awareness Week?