Tag Archives: Donation

Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Audio

Food Allergy Walk Pittsburgh 2016 (Asking for a $10 donation.)


It’s almost time for the FARE food allergy walk in Pittsburgh again this year.  Each year, I ask for your help before the walk in raising money for food allergy research & awareness/education.  This year the walk will be on Sunday October 2nd at the Pittsburgh Zoo.

I know money is tight.  I know there are a million causes worth donating to.  I know there are walks for everything these days.  So, I understand what I’m asking when I ask you to consider a donation to FARE in support of our walk.

My shellfish allergy is pretty severe, but I have learned to navigate life successfully with it.  It would be nice for people to not have to worry about these things some day.  Molly has recently outgrown an allergy to eggs, greatly in part to incredible pediatricians, local allergists involved in the FARE walk, and their advice as it is informed by the latest research and techniques.  There is still a chance that either of my kids could develop allergies later.  My shellfish allergy didn’t really manifest until I was in 3rd or 4th grade.

My plea isn’t the standard. I know not everyone has $50 or even $25 to give to a cause that may not even affect their lives directly.  I’m asking for $10 to go to FARE (Food Allergy Research & Education).  I’d rather get a bunch of small donations from a whole lot of people.

This is how my friends/followers/whatever break down on social media, and what the total would amount to if everyone managed to donate $10:

All of those except Tumblr are well over our team goal of $600.  All of them total would be $28,570.00.  I know there’s some obvious overlap, so that’s not a real number if everyone only donated $10, but it’s also not ridiculous.

Donations are tax deductible, you can opt for a receipt when you donate online, and you can read about what your donation will be used for.

If you’re reading this and don’t have $10 to spare, or your donation money is going to a cause closer to your heart, that’s cool too.  Just reading raises awareness and that is also extremely important.  You can find all kinds of food-allergy related rants and information here on my blog.  Sharing on your social media platform of choice would be really cool too.

FARE Walk For Food Allergy 2016 - Carroll Family Team Page

FARE Walk For Food Allergy 2016 – Carroll Family Team Page

Thank you for your time and your consideration.

💸💰💵 Go team #NoLobsterOmelettesPlease! 💸💰💵 | #FoodAllergy Walk #Pittsburgh


📣 So, I have 1,103 “friends” on Facebook, and 985 “followers” on Twitter. If everyone gave just $1 to the FARE 🚶walk for Food Allergies in Pittsburgh this year on Sept. 14th, I’d have $2088 donated. If you all gave $5, that would be $10,440. (OK, if you follow me on both social media platforms, you’d technically have to donate double.)

Please consider taking a few minutes to follow the URL, and donating a buck or two so we can raise #FoodAllergy awareness, and work towards a cure for Molly’s egg allergy and my shellfish/crustacean/mollusk/deathfish allergy. Our goal as a family is a measly $300 and we have $100 so far. I would be so grateful and proud if we could surpass that goal. Thank you for listening (reading), thank you for considering, & thank you in advance for any donations.

[Also: This involves no video-ing, no wasted water, and no whining about how not-helpful a viral campaign is even though it clearly worked. Good job #ALS people!]

http://www.foodallergywalk.org/pittsburgh2014/carrollfamily

💸💰💵 Go team #NoLobsterOmelettesPlease! 💸💰💵

Last minute plea for Food Allergy Walk donations!


  • My Goal: $600.00
  • I Have Raised: $264.75

I’m 44% of the way there with 2 days left for your donations! If 34 people donate $10 each, I can exceed my goal. Help me out with my goal & help a good cause?

Even if you can’t donate, please just share the link like crazy?  Thanks for your time and your consideration.

http://www.foodallergywalk.org/goto/aixelsyd13

44%

Read more about it here:

2012 FAAN Walk for Food Allergy
2012 FAAN Walk for Food Allergy
Related Articles
Food Allergy & Anaphylaxis Network

Food Allergy & Anaphylaxis Network (Photo credit: Wikipedia)

Really, I haven’t forgotten.


Haven’t been blogging much lately, but I have a new job, am trying to get mazes done when I can, and I’ve been researching several potential purchases to help with said job online.  I will no doubt get back to blogging once things level out.

Any advice on which Epipen leg pouch I should get?  The OmaxCare™ LegBuddy™, the Allergy Essentials Epissentials™ Epipen Holder, or something else?

OxmaCare™ LegBuddy™

OxmaCare™ LegBuddy™

Epissentials™ Epipen Case

Epissentials™ Epipen Case

Medipouch Leg Wrap

Medipouch Leg Wrap

I finally got my prescription renewed, & got a double-pack. Thankfully I’ve never had to jab myself with one.  I did try the practice one a few times.  So, what do you do with your expired ones?  Does anyone take donations or recycle them?

Help Me Reach My Goal!

Help Me Reach My Goal!

Don’t forget, I’ll be doing the FAAN Walk For Food Allergy on Sept. 16th in Pittsburgh, and I could certainly always use more donations!  I’m only about a third of the way to my goal this year, so I can certainly use some help.

I’m also always trying to figure out how to come up with cash to buy more goofy guitars, and Ernie and the Berts is writing more stuff & hoping to record ASAP.  I try to catch other local & national shows when I can.

Of course, I’m also spending time with the wife, as we have some fun stuff coming up… like weddings, hopefully the Renaissance Fair soon, the Food Allergy Walk, a camp service for church, and more.

I’m still not Kmart or McDonald’s, but I do have some blog feedback that I need to address.

I might have some more stuff asking opinions in the next few days.

2012 FAAN Walk for Food Allergy in Pittsburgh


2011 Food Allergy Walk Pittsburgh - Appreciation Certificate

Can we do it again?

Well, I’m doing it again.  My wife & I had a blast last year, it was cool to see so many others out there to support their friends or family members with food allergies, or even for themselves.

Most importantly, we all helped raise money for Food Allergy research & awareness.

Last year, I exceeded my $300 goal & made over $500 & was one of the top individual earners.  This year, I’d like to break $600 or higher, and I need your help to get there.

Goal: $600.00

Goal: $600.00

So please, consider sponsoring me in the walk.  Your tax-deductible donation can be made easily online.  Just go to the following url & click the “Donate” button:

I’d also appreciate if you could spread the word by sharing that url or this blog.

I have just over a month to get these donations in, so let’s get the ball rolling!

Here’s a little bit of information about FAAN & how your donations are going to be used:

About Us

Founded in 1991, the Food Allergy & Anaphylaxis Network (FAAN) is the world leader in information, resources, and programs for food allergy, a potentially life-threatening medical condition that afflicts as many as 15 million Americans, including approximately 6 million children.

A nonprofit organization based in Fairfax, Va., FAAN has approximately 25,000 members in the U.S., Canada, and 58 other countries. FAAN provides information and educational resources about food allergy to patients, their families, schools, health professionals, pharmaceutical companies, the food industry, and government officials.

For more information about FAAN, including additional food allergy facts and statistics, please visit www.foodallergy.org.

Mission

To raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis.

Why We Walk

  • We walk to fund food allergy awareness, advocacy, education, and research programs.
  • We walk to provide understanding, hope, and an opportunity for those affected by food allergies to network.
  • We walk to save a life!

Over the years, FAAN has been at the forefront of progress in food allergy awareness, advocacy, education, and research. Findings from research studies have been used to change federal and state laws, improve school policies, raise public awareness, improve the daily lives of individuals with food allergy, and provide education for patients, caregivers, and health professionals. Funds from programs like the FAAN Walk for Food Allergy support FAAN’s efforts to achieve these feats.

FAAN continues to lay the groundwork for a brighter future for those with food allergies.

How FAAN Uses Your Contributions

FAAN uses contributions to fund its education, advocacy, research, and awareness efforts. Eighty-one cents of every dollar is spent on innovative research and programs that help give families struggling with food allergies a fighting chance. Since 2004, FAAN has funded more than $4.6 million in research. Education remains the single most important component of staying safe while living with food allergies. Since 2006, FAAN has funded nearly $175,000 in Community Outreach Grants to local support groups throughout the country.

Got it?

You can also sign up to walk in Pittsburgh, or in your area if you’re interested. We could also use local sponsors, volunteers, and much more help.  Check out the Pittsburgh page for details!

Thank you for your time & considering a donation.

2012 FAAN Walk for Food Allergy

2012 FAAN Walk for Food Allergy

Voices Against Brain Cancer


Voices Against Brain Cancer

Voices Against Brain Cancer

Jesse Laz from the band Locksley is participating in a walk to fight Brain Cancer.  I think it should be obvious to Ernie and the Berts friends & fans that it’s an issue close to our hearts.  I urge you to support Jesse for this walk.  Do it for Jesse’s friends and family, and do it for our friend & fearless leader, Erin “Ernie” Payne.

Erin was the only person more vocal than me when I was raising money for the food allergy walk, & even put his money where is mouth was, as well as providing special edition T-shirts.

Jesse is trying to reach $17,000 in 17 days.  It’s a lofty goal, and every donation counts.  He’ll press a special vinyl if & only if the goal is met.  So please, donate if you can, or at least share the link like mad.