Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

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Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Food Allergy Walk Pittsburgh 2016 (Asking for a $10 donation.)


It’s almost time for the FARE food allergy walk in Pittsburgh again this year.  Each year, I ask for your help before the walk in raising money for food allergy research & awareness/education.  This year the walk will be on Sunday October 2nd at the Pittsburgh Zoo.

I know money is tight.  I know there are a million causes worth donating to.  I know there are walks for everything these days.  So, I understand what I’m asking when I ask you to consider a donation to FARE in support of our walk.

My shellfish allergy is pretty severe, but I have learned to navigate life successfully with it.  It would be nice for people to not have to worry about these things some day.  Molly has recently outgrown an allergy to eggs, greatly in part to incredible pediatricians, local allergists involved in the FARE walk, and their advice as it is informed by the latest research and techniques.  There is still a chance that either of my kids could develop allergies later.  My shellfish allergy didn’t really manifest until I was in 3rd or 4th grade.

My plea isn’t the standard. I know not everyone has $50 or even $25 to give to a cause that may not even affect their lives directly.  I’m asking for $10 to go to FARE (Food Allergy Research & Education).  I’d rather get a bunch of small donations from a whole lot of people.

This is how my friends/followers/whatever break down on social media, and what the total would amount to if everyone managed to donate $10:

All of those except Tumblr are well over our team goal of $600.  All of them total would be $28,570.00.  I know there’s some obvious overlap, so that’s not a real number if everyone only donated $10, but it’s also not ridiculous.

Donations are tax deductible, you can opt for a receipt when you donate online, and you can read about what your donation will be used for.

If you’re reading this and don’t have $10 to spare, or your donation money is going to a cause closer to your heart, that’s cool too.  Just reading raises awareness and that is also extremely important.  You can find all kinds of food-allergy related rants and information here on my blog.  Sharing on your social media platform of choice would be really cool too.

FARE Walk For Food Allergy 2016 - Carroll Family Team Page

FARE Walk For Food Allergy 2016 – Carroll Family Team Page

Thank you for your time and your consideration.

Cancer Benefit Show


Cancer

Image by GDS Infographics via Flickr

Borrowed this from the Ernie and the Berts blog…

⚕☣☤☣⚕ Attention Kids Under 21 and People Who Hate Cancer:

We have a show coming up that you ought to make an extra effort to attend.  We don’t do many all ages gigs, so this may be your only chance for a while.

This formerly had a slightly more impolite name, but it has been toned down a little bit:  P!$$ ON CANCER: A Musical Collaboration to fight for a friend’s life!

A friend of Bert’s has set up the show, and it looks to be (the good kind of) chaos.  Disgust in Disguise are a bunch of cool cats and it looks like there’s a really diverse set of musical genres happening, as well as a silent auction and some food & drink specials.

We’re asking you to come out, support a good cause, listen to some music, eat, drink, & be merry.  Please don’t literally pee on anything or anyone.  (This means you, Brad.)

Here are the details in case you missed ‘em!

When your body is your enemy, how would you choose to fight?

Join us as we take a stand against a friend’s cancer.
Help us fight his silent war.
March with us, beside him, as we tell his cancer to F@#! off!
He’s ours. We’re not done with him, yet!

The Bands:

  • 12:00 AM | Voices and Vessels | FB / RN / My_ / @t | (Metal / Post-Hardcore)
  • 11:00 PM | Disgust in Disguise | FB / RN / My_ / @t | (Metal / Hardcore / Punkrock)
  • 10:00 PM | Ernie and the Berts | FB / RN / My_ / @t | (Rock / Pop / Punk)
  • 09:00 PM | Lyndsey Smith | FB / RN / My_ / @t | (R&B/Soul / Funk / Pop)
  • 08:00 PM | Midnight Rose | FB / RN / My_/ @t | (???)
  • 07:00 PM | The Ele[mental] | FB / RN / My_ / @t | (Rock / Alternative / Indie Rock)
  • 06:00 PM | The Long Knives | FB / RN / My_ / @t | (Indie / Psychiatric / Distofuzzadelic)

The Place:

The Details:

If anyone has any more details, links that I missed, or a flyer, please let us know in the comments!

Still taking donations for the Food Allergy Walk


90% towards my goal of $500!

90% towards my goal of $500!

That’s right, Bethany & I are still taking donations for the Food Allergy Walk in  Pittsburgh.  It’s happening this Sunday, Sept. 18th at 11:00 am.  You can make a secure online tax-deductible donation for either of us, to help us meet our prospective goals, or you can hook us up with a check made out to FAAN.

Support me!
Support me!

Just click the blue “Support Me” button under each of our photos on our respective profiles to donate!

You can read my older posts about the walk for more info:

If you’re following the “Celebrity Endorsement” thing, Andrew Stockey did eventually contact me & agree to help get the word out on WTAE.com.  I still haven’t’ seen anything there yet.

Interestingly, Qdoba & Chick-fil-A also said they’d donate something, yet they haven’t online yet anyway.  I’m going to have to remind them.

You can also read all of my Food Allergy related posts if interested in learning more about food allergies form an outspoken crazy blogger.

More from the Food Allergy Walk Facebook Page

The Walk in Pittsburgh will feature lots activities, such as: face painting, balloon artist, trackless train, mad science and inflatables. We will have a musical performance by Kyle Dine and be joined by Pittsburgh Panthers mascot ROC.

We look forward to once again welcoming Sally Wiggin and Stephen Cropper. Following the Walk, will be Q&A session with allergists from AGH and UPMC who have volunteered their time. Rep. Matt Smith will join us to share information about the new EpiPen laws in PA.

You can get one of these limited edition T-shirts for donating $50 or more, thanks to Erin “Ernie” Payne:

King Krab Orange Ernie and the Berts T-Shirt
Special Edition King Krab Orange Ernie and the Berts T-Shirt