Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

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Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Dey Mylan’s irresponsible TV ad and its possible consequences…


Food allergy parents & patients… Brace yourself, then watch this:

Dey Pharma (Mylan) must have handed full control over to their ad company, & not approved (or even watched) the commercial.  That’s the only scenario I can possibly accept.  They certainly could not have come up with this… could they?

Is it loaded? - Food Allergy Cartoon

Is it loaded? - Food Allergy Cartoon (Another great one from Tiffany!)

They didn’t notice that it contradicts their own patient information not to mention common sense?

If they did run it knowingly, I’m going to talk to my doctor about switching brands to TwinJect unless they issue some sort of retraction or apology.

It is wholly irresponsible to convey the EpiPen as a fail safe live-saving device allowing you to disregard caution and eat foods with unknown ingredients.  To clear it up for the non-educated (and Dey Pharma/Mylan):

  • Epinephrine does not work every time.
  • Epinephrine buys you time until the ambulance can arrive or until you can get to  hospital for proper medical treatment.
  • Epinephrine is not a “cure” for knowingly eating your allergen or cross contamination.

The worst part is it’s already difficult enough to convey the severity of food allergies to people who aren’t afflicted… and to impress the very rules above in addition to why you can’t “just try a little” or how scary cross contamination can be.

This commercial is ignorant, and it spreads ignorance.

Get informed here:

Let Dey know (& let Mylan know) how upset you are!

Thanks for reading, now pass it on!  Share, tweet, post to Facebook, pin, tumblr, press, blog, +1, and do whatever you do!

EpiPens are portable epinephrine-dispensing de...

EpiPens are portable epinephrine-dispensing devices which can be used to alleviate the symptoms of severe, acute allergies. (Photo credit: Wikipedia)

This is why we need epi-pens in schools!


Finally, some good food allergy related news from a school surrounding the use of epinephrine auto-injectors…

English: Adult (0.3mg) and pediatric (0.15mg) ...

Epi-Pens to the rescue!

I for one was growing tired of the tragic stories.  Jared Smyth and his school had an action plan, and it saved his life.  This is how all these types of stories should end!  Congratulations to all involved!  The kid himself, the school nurse, the parents, the administration, the hospital, and the media for covering good news.

Sadly, I can only find one source for the article, while there were a plethora for Ammaria Johnson & Katelyn Carlson.  More media outlets need to pick this up & run with it!  Get the word out there that having epi-pens in schools is a great thing!  Of course, it always helps to educate your child on not taking any food from others… but as evidenced, it’s not always that easy, and accidents do happen.

The Science of Anaphylaxis / We Need Epi-Pens in Schools!


Lots of food allergy stuff going on….

Food Allergy & Anaphylaxis Network

FAAN

Separate is indeed not equal! Food allergies & bullying. |-o-|


I haven’t blogged about food allergies lately, so it’s time.  Luckily the other day, a great post popped up in Google Reader, with a striking headline:  We Have Come Too Far To Forget, Separate Is Not Equal

I happen to consider the author Thanita a Twitter friend, and a proud member of the #FoodAllergyMomArmy.  It’s got a great message.  Obviously the first thing it brings to mind is racism, but it can now be applied to any group facing discrimination.

As I’ve said before… I’d like to see any changes brought forth from a consumer side of view, not a legislative one.  When we’re dealing with schools, parents really need to get involved and not just the parents of the food-allergic children.  Legislation in this area may be the best answer as far as schools are concerned.  After all, it’s a gub’ment institution, right?  (Things like the School Access to Emergency Epinephrine Act are extremely important to protect food-allergic kids, as well as any that may have reactions to thinks like latex or bee stings.  Pennsylvania now seems like it’s on top of things.)

All in all, some earnest thinking about the whole thing will bring forth a hopefully easy decision:

When other parents tell the family of the anaphylactic child to just “home-school, it’s safer, we’re looking out for your best interest”, it’s a joke. Separate Is Not Equal.

When a child is forced to peer over a sea of smiling, laughing, socializing children, all the while sitting on a separate table alone, “for his/her safety”, it’s Separate and Not Equal.

We have to ask ourselves, how far have WE come since the 1950’s? Would we be doing this to a child with autism? To a child in a wheelchair? To a child with dark skin? If the answer is never, then do not do it to a child with an anaphylactic disability.

Think about that.  There’s a lot of buzz about bullying lately, & it certainly falls on food-allergic kids.  For an example, read this awesome article by another #FoodAllergyMomArmy member and cool Twitter friend Libby about bullying: Bullies, Food Allergies and The Force

This is heavy:

By the way, just one mistake can be fatal. Have I mentioned the shocking levels of stress in parents of children with food allergies?

So this morning I dressed my son in one of his Star Wars t-shirts and talked to him about Katie and how it’s ok to be different and not ok to tease or bully someone else. I packed an allergen free lunch, gave him hugs and kisses, told him I loved him and sent him off to school with a prayer that he would come home safely, something I never take for granted.

To the kids with food allergies and their parents, may the force be with you. You’re going to need it.

One mistake can be fatal.  Let’s all help make sure it doesn’t come to that.  These food allergy moms & dads (& brothers & sisters, etc.) are badass, I tell you.  It takes courage to muster up the confidence to put together a safe plan for your kid(s), and to be strong for them when you probably just want to break down & cry about it yourself sometimes.

Food Allergy & Anaphylaxis Network

Prevent Bullying

It’s up to all of you reading to inform schools, restaurants, and everyone that you’re not going to exclude yourself or your kids from society or live in fear from your food allergy.  It’s up to you to be ever-vigilant and cautious, but it’s all so up to you to not back down or let your kids be ostracized for being different.

Now, where can I get an Epi-pen case that looks like a lightsaber?

Lightsaber