Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Food Allergies – Check out the Blog Carnival


I haven’t blogged about food allergies in a while.  I haven’t blogged in a while.  Life has been busy, and that’s a good thing.

Food Allergy Fun | Somewhere in the middle...

July 2012 Living With Food Allergies Blog Carnival

I hope to participate in the FAAN Food Allergy Walk in Pittsburgh again this year, and in that spirit, here’s a blog you need to read:

July 2012 Living With Food Allergies Blog Carnival

You simply can’t put together a better list of resources, articles, tips, and fun related to food allergies.  I suggest you read, subscribe, bookmark, or do whatever you do.  Take the time to take a look at the stuff that interests you, and pass it along.  We all know awareness is half (if not more) of the battle.

All of this reminds me, it’s time to get my Epi-pen prescription renewed…

I need something to put my junk in.


So, recently I’ve been thinking about getting some sort of messenger bag to keep some stuff in.  Let the jokes begin.  I know I have made fun of the vaunted murse before.  Hipsters everywhere would have admonished my belittling of their manbags.

Jim Dunlop Tortex Fin Pick 1.14mm (Purple)I just have too much stuff in my pockets.  Here’s an inventory for you right now…

I’ve also been carrying around my leather coat that’s like my own personal medicine cabinet.  It’s too hot to be carrying around a leather jacket, and the stuff is too bulky for hoodie pockets.  (It’ll be too hot to wear those soon, too.)  It usually has…

  • Daily stomach medicine
  • “Calm down if I need it” medicine

And right now some…

This is clearly getting out of hand.  I’m not sure what to do, but I need to do something.  There’s an old Dennis the Menace cartoon (or the TV show or a movie) where he empties his pockets and it’s a never-ending pile of stuff.  I feel like that, without the slingshot or overalls.

I joked with my wife one night that I needed a purse to keep all my stuff in.  Then I kept thinking that it might not be a bad idea to get a bookbag or something.  I have a nice backpack for the laptop… but I don’t have the need to carry the laptop anywhere daily.

I did take the discussion to Twitter, and gained encouragement from @allergicgirl, @VickysMama & @kyledine.

https://twitter.com/#!/kyledine/status/191867530833428481
https://twitter.com/#!/kyledine/status/190908291054977024
https://twitter.com/#!/allergicgirl/status/190866006305013760
https://twitter.com/#!/allergicgirl/status/191142565410635777

I feel like if I had a backpack, I’d be obligated to fill it with stuff.  I could fill a messenger bag with a bunch of stuff easily.  A multi-tool, an mp3 player, maybe a tablet & more pens.

I could get a small one, like Indiana Jones.  I fear I’d look more like Alan from The Hangover.  Big?  Small?  Leather?  Suede?  Canvas?  Nylon?  Patches?  No Patches?  (I could go the safety-pin, 1″ button, patch route.)  So many decisions.

Perception vs. Reality?

Perception vs. Reality?

My wife, Bethany, seems to think I won’t carry it, might lose it, or that the infatuation would quickly wear off.  Maybe she just doesn’t want  a husband that carries a purse?

I don’t see the fanny pack or those epi pen belt holders as an option.  Maybe a leg one?  And maybe a small pill box?

What do you think?

Dey Mylan’s irresponsible TV ad and its possible consequences…


Food allergy parents & patients… Brace yourself, then watch this:

Dey Pharma (Mylan) must have handed full control over to their ad company, & not approved (or even watched) the commercial.  That’s the only scenario I can possibly accept.  They certainly could not have come up with this… could they?

Is it loaded? - Food Allergy Cartoon

Is it loaded? - Food Allergy Cartoon (Another great one from Tiffany!)

They didn’t notice that it contradicts their own patient information not to mention common sense?

If they did run it knowingly, I’m going to talk to my doctor about switching brands to TwinJect unless they issue some sort of retraction or apology.

It is wholly irresponsible to convey the EpiPen as a fail safe live-saving device allowing you to disregard caution and eat foods with unknown ingredients.  To clear it up for the non-educated (and Dey Pharma/Mylan):

  • Epinephrine does not work every time.
  • Epinephrine buys you time until the ambulance can arrive or until you can get to  hospital for proper medical treatment.
  • Epinephrine is not a “cure” for knowingly eating your allergen or cross contamination.

The worst part is it’s already difficult enough to convey the severity of food allergies to people who aren’t afflicted… and to impress the very rules above in addition to why you can’t “just try a little” or how scary cross contamination can be.

This commercial is ignorant, and it spreads ignorance.

Get informed here:

Let Dey know (& let Mylan know) how upset you are!

Thanks for reading, now pass it on!  Share, tweet, post to Facebook, pin, tumblr, press, blog, +1, and do whatever you do!

EpiPens are portable epinephrine-dispensing de...

EpiPens are portable epinephrine-dispensing devices which can be used to alleviate the symptoms of severe, acute allergies. (Photo credit: Wikipedia)