Tag Archives: Food Allergy & Anaphylaxis Network

Last minute plea for Food Allergy Walk donations!


  • My Goal: $600.00
  • I Have Raised: $264.75

I’m 44% of the way there with 2 days left for your donations! If 34 people donate $10 each, I can exceed my goal. Help me out with my goal & help a good cause?

Even if you can’t donate, please just share the link like crazy?  Thanks for your time and your consideration.

http://www.foodallergywalk.org/goto/aixelsyd13

44%

Read more about it here:

2012 FAAN Walk for Food Allergy
2012 FAAN Walk for Food Allergy
Related Articles
Food Allergy & Anaphylaxis Network

Food Allergy & Anaphylaxis Network (Photo credit: Wikipedia)

Really, I haven’t forgotten.


Haven’t been blogging much lately, but I have a new job, am trying to get mazes done when I can, and I’ve been researching several potential purchases to help with said job online.  I will no doubt get back to blogging once things level out.

Any advice on which Epipen leg pouch I should get?  The OmaxCare™ LegBuddy™, the Allergy Essentials Epissentials™ Epipen Holder, or something else?

OxmaCare™ LegBuddy™

OxmaCare™ LegBuddy™

Epissentials™ Epipen Case

Epissentials™ Epipen Case

Medipouch Leg Wrap

Medipouch Leg Wrap

I finally got my prescription renewed, & got a double-pack. Thankfully I’ve never had to jab myself with one.  I did try the practice one a few times.  So, what do you do with your expired ones?  Does anyone take donations or recycle them?

Help Me Reach My Goal!

Help Me Reach My Goal!

Don’t forget, I’ll be doing the FAAN Walk For Food Allergy on Sept. 16th in Pittsburgh, and I could certainly always use more donations!  I’m only about a third of the way to my goal this year, so I can certainly use some help.

I’m also always trying to figure out how to come up with cash to buy more goofy guitars, and Ernie and the Berts is writing more stuff & hoping to record ASAP.  I try to catch other local & national shows when I can.

Of course, I’m also spending time with the wife, as we have some fun stuff coming up… like weddings, hopefully the Renaissance Fair soon, the Food Allergy Walk, a camp service for church, and more.

I’m still not Kmart or McDonald’s, but I do have some blog feedback that I need to address.

I might have some more stuff asking opinions in the next few days.

2012 FAAN Walk for Food Allergy in Pittsburgh


2011 Food Allergy Walk Pittsburgh - Appreciation Certificate

Can we do it again?

Well, I’m doing it again.  My wife & I had a blast last year, it was cool to see so many others out there to support their friends or family members with food allergies, or even for themselves.

Most importantly, we all helped raise money for Food Allergy research & awareness.

Last year, I exceeded my $300 goal & made over $500 & was one of the top individual earners.  This year, I’d like to break $600 or higher, and I need your help to get there.

Goal: $600.00

Goal: $600.00

So please, consider sponsoring me in the walk.  Your tax-deductible donation can be made easily online.  Just go to the following url & click the “Donate” button:

I’d also appreciate if you could spread the word by sharing that url or this blog.

I have just over a month to get these donations in, so let’s get the ball rolling!

Here’s a little bit of information about FAAN & how your donations are going to be used:

About Us

Founded in 1991, the Food Allergy & Anaphylaxis Network (FAAN) is the world leader in information, resources, and programs for food allergy, a potentially life-threatening medical condition that afflicts as many as 15 million Americans, including approximately 6 million children.

A nonprofit organization based in Fairfax, Va., FAAN has approximately 25,000 members in the U.S., Canada, and 58 other countries. FAAN provides information and educational resources about food allergy to patients, their families, schools, health professionals, pharmaceutical companies, the food industry, and government officials.

For more information about FAAN, including additional food allergy facts and statistics, please visit www.foodallergy.org.

Mission

To raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis.

Why We Walk

  • We walk to fund food allergy awareness, advocacy, education, and research programs.
  • We walk to provide understanding, hope, and an opportunity for those affected by food allergies to network.
  • We walk to save a life!

Over the years, FAAN has been at the forefront of progress in food allergy awareness, advocacy, education, and research. Findings from research studies have been used to change federal and state laws, improve school policies, raise public awareness, improve the daily lives of individuals with food allergy, and provide education for patients, caregivers, and health professionals. Funds from programs like the FAAN Walk for Food Allergy support FAAN’s efforts to achieve these feats.

FAAN continues to lay the groundwork for a brighter future for those with food allergies.

How FAAN Uses Your Contributions

FAAN uses contributions to fund its education, advocacy, research, and awareness efforts. Eighty-one cents of every dollar is spent on innovative research and programs that help give families struggling with food allergies a fighting chance. Since 2004, FAAN has funded more than $4.6 million in research. Education remains the single most important component of staying safe while living with food allergies. Since 2006, FAAN has funded nearly $175,000 in Community Outreach Grants to local support groups throughout the country.

Got it?

You can also sign up to walk in Pittsburgh, or in your area if you’re interested. We could also use local sponsors, volunteers, and much more help.  Check out the Pittsburgh page for details!

Thank you for your time & considering a donation.

2012 FAAN Walk for Food Allergy

2012 FAAN Walk for Food Allergy

Food Allergies – Check out the Blog Carnival


I haven’t blogged about food allergies in a while.  I haven’t blogged in a while.  Life has been busy, and that’s a good thing.

Food Allergy Fun | Somewhere in the middle...

July 2012 Living With Food Allergies Blog Carnival

I hope to participate in the FAAN Food Allergy Walk in Pittsburgh again this year, and in that spirit, here’s a blog you need to read:

July 2012 Living With Food Allergies Blog Carnival

You simply can’t put together a better list of resources, articles, tips, and fun related to food allergies.  I suggest you read, subscribe, bookmark, or do whatever you do.  Take the time to take a look at the stuff that interests you, and pass it along.  We all know awareness is half (if not more) of the battle.

All of this reminds me, it’s time to get my Epi-pen prescription renewed…

It’s Food Allergy Awareness Week!


It’s Food Allergy Awareness Week again, and guess what?  Food allergies and the food-allergic are still here… and we’re still allergic.  We’re still informing you about cross-contamination and safety.

A song from Kyle Dine:

Some #FAAW tweets from my #FoodAllergy tweeps:

A lot of people push for government recognition or regulation.  I look for a consumer push, and recognition from the general populace.  We can all agree that we need to convey the seriousness of cross-contamination with foods… at schools, in restaurants, at home… and everywhere.

Learn more about what you can do here:  Raising Awareness, Making an Impact

Check out my Food Allergy related posts here:  Allergies

Photo of skin test about 15 minutes after the ...

Photo of skin test about 15 minutes after the application of allergens and the scratching. (Photo credit: Wikipedia)

I hope to do the Food Allergy Walk in Pittsburgh again this year.  Perhaps I can pull together a team or get even more sponsors than last year?  Your donations were incredible last year.

Also… don’t forget, Adults can have food allergies too.  We don’t “grow out” of them.  We can’t “just pick it off” or “have just a little”.  It’s a very serious thing.

So, how are you celebrating Food Allergy Awareness Week?

The Science of Anaphylaxis / We Need Epi-Pens in Schools!


Lots of food allergy stuff going on….

Food Allergy & Anaphylaxis Network

FAAN

Ask Your Senator to Support the School Access to Emergency Epinephrine Act


Got this email from FAAN, thought I’d share.  This is your call to action:

From: Food Allergy & Anaphylaxis Network (FAAN)
To: <me>
Sent: Thursday, November 17, 2011 3:40 PM
Subject: Ask Your Senator to Support the School Access to Emergency Epinephrine Act

The Food Allergy & Anaphylaxis Network (FAAN)

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Dear Eric,The Food Allergy & Anaphylaxis Network (FAAN™) has been working with U.S. Senators Dick Durbin (D-IL) and Mark Kirk (R-IL) on federal legislation that would encourage states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors – meaning epinephrine that is not prescribed specifically to a single student but can be used for any student and staff member in an anaphylactic emergency.

Today this bill (S. 1884), the School Access to Emergency Epinephrine Act, was introduced in the Senate.

Adkins, Maria, and Sen. Kirk 2Sen. Kirk with Brianna and Rhonda Adkins, and FAAN CEO Maria Acebal on Capitol Hill Tuesday, Nov. 15.

Earlier this week, FAAN CEO Maria L. Acebal, joined by Rhonda Adkins, wife of country music superstar and Celebrity Ambassador Who Cares Trace Adkins, and Adkins’s young daughter Brianna, visited lawmakers on Capitol Hill to urge them to support this lifesaving legislation.

Now we need your help to get your senators’ support! Please download our sample letter of support, personalize it, and send it to their senators.

You can look up your local senators at www.senate.gov.

In addition to protecting those whose epinephrine auto-injector isn’t immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and don’t have a prescribed epinephrine auto-injector. Data shows that up to 25% of all epinephrine administrations that occur in the school setting involve students and adult staffers whose allergy was unknown at the time of the event.

Only a handful of states have laws related to stock epinephrine. S. 1884, however, will provide an incentive for states to enact their own laws allowing school personnel to keep and administer a non-student specific epinephrine auto-injector in case of an emergency. (The state laws would be similar to the ones enacted in Illinois and Georgia in 2011.)

Thank you for your help gathering support for S. 1884. We will keep you posted as FAAN continues to work to secure passage of this important legislation. Together, we can save the lives of those with potentially life-threatening food allergies.

Sincerely,
The Food Allergy & Anaphylaxis Network

 


FAAN (The Food Allergy & Anaphylaxis Network)

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Here’s that sample letter:

MODEL Letter of Support for the School Access to Emergency Epinephrine Act

Note:  Please paraphrase.  It is important that Senators do not receive duplicates of the same letter from different individuals. You can look up your local senators at www.senate.gov.

 

The Honorable (insert Senator’s name)

United States Senate

Washington, DC  20510

Dear Senator (insert name):

I am writing to ask you to co-sponsor S. 1884, the School Access to Emergency Epinephrine Act, introduced by Senators Dick Durbin and Mark Kirk. I am the parent of a child with severe food allergies.  (Personalize here by inserting a brief description of your child’s allergies.)

Children with food allergies are at risk for anaphylaxis, a serious allergic reaction that is rapid in onset and may cause death. To prevent death, anaphylaxis must be treated promptly with an injection of epinephrine. The Durbin-Kirk bill would encourage states to ensure that epinephrine is available in schools and that school personnel are trained to administer it in an emergency. Epinephrine is safe and easy to administer. Children are able to self-administer the medication, and any adult working in a school would be capable of learning how to administer epinephrine in a matter of minutes.

Nearly 6 million American children have potentially life-threatening food allergies. Schools need to be prepared to treat allergic reactions in the event a student’s personal epinephrine auto-injector isn’t available or the student is having a reaction for the first time.

The School Access to Emergency Epinephrine Act is not a controversial bill. It is endorsed by the Food Allergy & Anaphylaxis Network, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, and the National Association of School Nurses. On average it will cost a school just over $100 to have epinephrine available to prevent a fatality from anaphylaxis. This is a small price to pay to save the life of a child.

I hope you will co-sponsor the Durbin-Kirk bill and work to assure passage of this legislation. Thank you for considering my views.

Sincerely,

Now, get to work!

Epi Pen Bill! (The School Access to Emergency Epinephrine Act)


I haven’t written about food allergies in a while.  I would think that Epi-Man would be pleased with this post.  Check out this article about legislation being brought forth to give easier access to epinephrine auto-injectors and their administration by school staff.

EpiPens are portable epinephrine-dispensing de...

Image via Wikipedia

Read all about the The School Access to Emergency Epinephrine Act at the FAAN website.

IMGP3289

Image by raindrift via Flickr

I’m not big on the gub’ment micro-managing… but how can I not get behind this?  I’d like to see something like this eventually passed for restaurants too.  Why not have one more step in keeping kids & adults safe?

Yes, the act is aimed at kids with food allergies… but us adults are out there too.  What if a teacher, administrator, janitor, nurse, or anyone else on site has a life-threatening food allergy?  This kind of thing could come in handy for all of us out there.

Keep watching the news, I hope this gets passed soon and without any political shenanigans.

Epi-men!

Epi-men!

Pittsburgh’s Food Allergy Walk 2011 Recap


4th out of the 5 top individual earners!

4th out of the 5 top individual earners!

So, we had a great time on Sunday at the Pittsburgh Food Allergy Walk!  I was honored to receive a certificate for being a top individual fundraiser, and glad I could help.  I was also asked to perhaps take part in getting the word out next year, and maybe be in on some of the planning.  My online chatter was picked up by this year’s volunteer chair Uwe Winzen, as well as the founder of EpiMoms (I’m a terrible person, I forgot her name already).  How cool is that?

(I say next year, we get the 501st Legion out there!  –  Looks like they appeared at some other cities’ food allergy walks!)

Campaign Progress | Goal: $50,000.00 Achieved: $39,333.05

Campaign Progress - Goal: $50,000.00 Achieved: $39,333.05

As of right now, the site states that we raised $39,333.05 toward the $50k goal.  I head a number in the $40 range on Sunday, but perhaps they’re still tallying cash & check donations made the day of the walk.  With online & offline donations, I raised $560.55 and Bethany raised $106.85… so we raised a total of $667.40.  We quite literally could not have done it without the support of our friends & family.

I did notice that I was in the minority… all the walkers received a ribbon: Blue for people with food allergies, green for friends & family supporters.  I didn’t see too many people my age or older with blue ribbons.  It seemed to be a core of families who had small children & young teens with food allergies.

Kyle Dine

Kyle Dine

It was fun to finally meet & see a performance from Kyle Dine after talking via Twitter & Facebook.  After all, we do represent the #FoodAllergyDudeArmy.  Kyle does great work educating kids on what to do regarding not taking food from just anyone, getting an adult to read labels, and speaking out right away about reactions…  as well as letting them know they’re not alone.  I also got to personally thank local celebrity Sally Wiggin for her generous donation!  She called me a sweetheart.

I have some photos up on Facebook, and hope to send them to FAAN so they can be placed in their Flickr photostream.  Hopefully others will comment on the day’s events at the Pittsburgh Food Allergy Walk Facebook Page.

Got a nice little video thank-you from FAAN too:

Smiley Cookie

Smiley Cookie

One of the coolest things I took away from the day was talking to Chef Regis Holden from Eat ‘n Park about their food allergy policies & procedures.  He told us how he worked with Bill Moore, their Director of Safety and Security, to develop practices from marking the order, to looking up all of the ingredients with possible cross-contaminants, to this awesome little purple kit with a sterile sanitary contaminant-free cutting board, knife, tongs, and other tools.  Chef Holden also spoke of yearly allergen training video refreshers, and of how he had just recently heard good things about the Eat ‘n Park on Banksville Road which is nearby.  I may just have to go see for myself, and blog about their process and my adventure!

Thanks again to everyone who gave us donations, and to the walk organizers.  I think we did some good work for FAAN!

Thanks to everyone who donated for the Food Allergy Walk!


Thanks to everyone who donated to me for the Food Allergy Walk on Sunday. The Food Allergy & Anaphylaxis Network appreciates your donation, as do I!  I have smashed my original $300 goal, and now exceeded my current $500 goal.  I couldn’t have done it without the awesome support from friends & family!

If you were thinking of donating, but hadn’t yet… I’d like to still smash that goal, or you can donate to the lovely Bethany and help her reach her goal!