Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Food Allergy Walk Pittsburgh 2016 (Asking for a $10 donation.)


It’s almost time for the FARE food allergy walk in Pittsburgh again this year.  Each year, I ask for your help before the walk in raising money for food allergy research & awareness/education.  This year the walk will be on Sunday October 2nd at the Pittsburgh Zoo.

I know money is tight.  I know there are a million causes worth donating to.  I know there are walks for everything these days.  So, I understand what I’m asking when I ask you to consider a donation to FARE in support of our walk.

My shellfish allergy is pretty severe, but I have learned to navigate life successfully with it.  It would be nice for people to not have to worry about these things some day.  Molly has recently outgrown an allergy to eggs, greatly in part to incredible pediatricians, local allergists involved in the FARE walk, and their advice as it is informed by the latest research and techniques.  There is still a chance that either of my kids could develop allergies later.  My shellfish allergy didn’t really manifest until I was in 3rd or 4th grade.

My plea isn’t the standard. I know not everyone has $50 or even $25 to give to a cause that may not even affect their lives directly.  I’m asking for $10 to go to FARE (Food Allergy Research & Education).  I’d rather get a bunch of small donations from a whole lot of people.

This is how my friends/followers/whatever break down on social media, and what the total would amount to if everyone managed to donate $10:

All of those except Tumblr are well over our team goal of $600.  All of them total would be $28,570.00.  I know there’s some obvious overlap, so that’s not a real number if everyone only donated $10, but it’s also not ridiculous.

Donations are tax deductible, you can opt for a receipt when you donate online, and you can read about what your donation will be used for.

If you’re reading this and don’t have $10 to spare, or your donation money is going to a cause closer to your heart, that’s cool too.  Just reading raises awareness and that is also extremely important.  You can find all kinds of food-allergy related rants and information here on my blog.  Sharing on your social media platform of choice would be really cool too.

FARE Walk For Food Allergy 2016 - Carroll Family Team Page

FARE Walk For Food Allergy 2016 – Carroll Family Team Page

Thank you for your time and your consideration.

So, have you heard of the #TealPumpkinProject?


This year, we’ll have 3 bowls of treats for Halloween.  We’ll have the traditional chocolate gooey goodness, a bowl of peanut/tree-nut free treats, and a bowl entirely made up of non-food party favor-ish goodies.

Why?  Why not?  I was able to pick up a bunch of party favors at the Dollar Tree, and my wife Bethany got some Halloween themed stuff from Target.  The no-nuts candy wasn’t a big deal either, all we had to do was read the label… which we’re used to.  Even the extra bowl was only $1.  It wasn’t a whole lot of effort or money.

Even painting a foam pumpkin teal for use for years to come wasn’t a big deal, or printing the posters from the FARE website.  Oh yeah, I forgot to mention that.  This is a movement.  It started with some of the most kick-ass people on the planet, food allergy moms in Tennessee.

FARE | The Teal Pumpkin Project

My point, I guess, is that it isn’t a lot of effort but it can be a big huge gigantic deal for a kid.  What’s a big deal?  To feel included on a holiday where you’re hyper aware that you’re different.  To know that this piece of candy doesn’t contain nuts or wasn’t “processed in a facility that may also use peanuts or tree nuts.”  To know that if you’re allergic to dairy or chocolate or just about everything that everyone else can eat or isn’t one of the top 8, but this little trinket or toy (or 2 or 3 if you’re at our house) is all yours.  To know that you don’t have to go home & “trade up” for safe candy on this one.  To know that your parents didn’t have to drop off a safe treat with all the neighbors ahead of time, and that someone else “gets” it.

I always liked getting those Little Hugs drinks (which may be a safe treat), but some people would complain about the weight.  That would have been gone by the time I got back to the road when I was a kid.  Then again, times have changed.  When I was a kid, we had to play the “guess who you are” game.  If I asked a kid his name now, the next ring of the doorbell would probably be the local police.  Also, kids… always let your parents check your candy for razor blades or syringes.

Like I said, we read labels.  Luckily shellfish is generally easy form me to avoid in packaged foods, slightly less so in restaurants.  Our little girl Molly can’t do eggs.  Well, she can do eggs baked into things, but has to avoid straight up eggs, mayonnaise, some mustards, custard, and we just noticed… Mallow Cups?  (I hate them, they are the devil’s candy.  The wife loves them though… even though it tastes like someone replaced the inside of a Reese’s Peanut Butter Cup with sunscreen.)  Will we have to avoid meringue too?  Who knows?  Hopefully she outgrow her allergy, I’ll never get over mine without some kind of cure.

There are many others out there going through the same thing.  We can stick together, and support each other.  We can ask those without any food allergies to support us too.  Spreading awareness is the key to keeping us all safe.  So, take a few minutes to learn about the #TealPumpkinProject.  Use the hashtag on social media (Twitter, Instagram, Facebook, Google+, Pinterest, Tumblr, etc.), get a pumpkin and paint it teal, and/or print out the fliers.  Get some safe treats.

Teal Pumpkin Project - Ideas for non-food treats.

💸💰💵 Go team #NoLobsterOmelettesPlease! 💸💰💵 | #FoodAllergy Walk #Pittsburgh


📣 So, I have 1,103 “friends” on Facebook, and 985 “followers” on Twitter. If everyone gave just $1 to the FARE 🚶walk for Food Allergies in Pittsburgh this year on Sept. 14th, I’d have $2088 donated. If you all gave $5, that would be $10,440. (OK, if you follow me on both social media platforms, you’d technically have to donate double.)

Please consider taking a few minutes to follow the URL, and donating a buck or two so we can raise #FoodAllergy awareness, and work towards a cure for Molly’s egg allergy and my shellfish/crustacean/mollusk/deathfish allergy. Our goal as a family is a measly $300 and we have $100 so far. I would be so grateful and proud if we could surpass that goal. Thank you for listening (reading), thank you for considering, & thank you in advance for any donations.

[Also: This involves no video-ing, no wasted water, and no whining about how not-helpful a viral campaign is even though it clearly worked. Good job #ALS people!]

http://www.foodallergywalk.org/pittsburgh2014/carrollfamily

💸💰💵 Go team #NoLobsterOmelettesPlease! 💸💰💵