Tag Archives: friends

Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Audio

Food Allergy Walk Pittsburgh 2016 (Asking for a $10 donation.)


It’s almost time for the FARE food allergy walk in Pittsburgh again this year.  Each year, I ask for your help before the walk in raising money for food allergy research & awareness/education.  This year the walk will be on Sunday October 2nd at the Pittsburgh Zoo.

I know money is tight.  I know there are a million causes worth donating to.  I know there are walks for everything these days.  So, I understand what I’m asking when I ask you to consider a donation to FARE in support of our walk.

My shellfish allergy is pretty severe, but I have learned to navigate life successfully with it.  It would be nice for people to not have to worry about these things some day.  Molly has recently outgrown an allergy to eggs, greatly in part to incredible pediatricians, local allergists involved in the FARE walk, and their advice as it is informed by the latest research and techniques.  There is still a chance that either of my kids could develop allergies later.  My shellfish allergy didn’t really manifest until I was in 3rd or 4th grade.

My plea isn’t the standard. I know not everyone has $50 or even $25 to give to a cause that may not even affect their lives directly.  I’m asking for $10 to go to FARE (Food Allergy Research & Education).  I’d rather get a bunch of small donations from a whole lot of people.

This is how my friends/followers/whatever break down on social media, and what the total would amount to if everyone managed to donate $10:

All of those except Tumblr are well over our team goal of $600.  All of them total would be $28,570.00.  I know there’s some obvious overlap, so that’s not a real number if everyone only donated $10, but it’s also not ridiculous.

Donations are tax deductible, you can opt for a receipt when you donate online, and you can read about what your donation will be used for.

If you’re reading this and don’t have $10 to spare, or your donation money is going to a cause closer to your heart, that’s cool too.  Just reading raises awareness and that is also extremely important.  You can find all kinds of food-allergy related rants and information here on my blog.  Sharing on your social media platform of choice would be really cool too.

FARE Walk For Food Allergy 2016 - Carroll Family Team Page

FARE Walk For Food Allergy 2016 – Carroll Family Team Page

Thank you for your time and your consideration.

Kyle Dine and Friends | DVD Review


I posted a review of Kyle Dine’s DVD on Amazon, and wanted to share it here…

Kyle Dine is an incredibly talented and extremely creative children’s entertainer.  He also wields the utmost authority on living life while coping with food allergies as he has multiple food allergies himself and is a successful world-travelled musical educator.

These expertly crafted videos are full of incredibly fun and catchy age-appropriate songs and lessons about having food allergies.  How to avoid your trigger foods, hand washing, always carrying your auto-injector, and how to quickly reach out for help if necessary are just some of the topics not only touched upon but driven home by Kyle and his puppet friends.  

As an adult with a severe food allergy I am so glad that this type of resource is available for the ever-growing “club” of the food allergic.  As a parent of a child with food allergies, this is an invaluable tool to help teach a toddler turning into a pre-schooler about the importance of not eating food unless it’s OK’d by mommy or daddy, and for her to let us know immediately if she is having a reaction.  Luckily she loves to wash her hands, so we’ve got that covered.  These lessons are delivered in the fine tradition of children’s programming like Sesame Street or Mr. Rogers, and they work.  Both of my kids were moving to the music upon our first viewing!

I not only recommend this for food allergy families, but I would say that extended family who may not understand food allergies, your child’s friends and their parents, and organizations like schools, churches, camps, & clubs could all benefit from the knowledge and entertainment provided by this set of DVD’s.  This programming ought to play on constant rotation in your family’s pediatric allergist’s office waiting room.

This can and will serve as an incredibly fun way to open the door to creating a fun, safe, and confident approach to living with food allergies.

Kyle Dine & Friends: Allergy Awareness with Songs, Puppets, and Games

Kyle Dine & Friends

 

Share your food allergy story to help a student [from Allergy Eats]


Allergy Eats Logo

Share your food allergy story to help a student

I haven’t posted about food allergies in a while.  I guess nothing has “set me off”. I guess that’s a good thing, right?  This is a good share though… You can help spread Food Allergy Awareness by helping this student put together a presentation for her sociology class using your stories.

This was the initial message to Paul at Allergy Eats:

Hey Paul,

I’m doing a presentation in my sociology class about the social impact and quality of life of food allergies on children, teens, and young adults. I was wondering if you could put on the website a place where people could talk about the impact FA have on them and/or their children? I’m also looking for how it impacts the family members and close friends of the FA individual.

Thanks!

You can get more details on how to share your story here: Share your food allergy story to help a student

I’m sure that any & all help is appreciated.  Even though I’m too old f=to even qualify for “young adult” any more, I shared a link to my “background” blog post and the more recent humorous graphPlease, share your story & share this link!

Hopefully the presentation can be posted online when finished, and we can all benefit from that much more food allergy awareness.

Onlywatchthebandwithaguy(orgirl)thatIknowinit-itis


This ties in with an earlier blog post.  I’m just trying to figure out how to reach people.  When people who have never heard of us catch us play, we generally have people coming up to say they dig it. It’s a good feeling.  I’d like it to happen more often because I think the band is doing a fun thing, and I’d like more people to share in the fun.

Getting people to come out in the first place is one struggle.  Getting yourself in front of an audience that’s already there is another struggle.  Getting people to watch you once they’re there seems to be an entirely different struggle.

We'd like to thank Bobby for coming out tonight!

Has this ever happened to you? Yes, it has.

Lately I’ve seen a trend of bands telling people saying “hey we’re 1st, come early” or “hey we’re last, come late” then their fans show up for just them & don’t bother to check anyone else out.   I generally tell people to come for the whole show & check out the other bands.  We try to book shows with bands we dig, just for this reason.

Spider-\m/an

Spider-Man :: This has nothing to do with anything other than the fact that I found it hilarious.

I hate to come of as a whiner, and I know I will to some readers.  I’m just trying to express my frustrations, and this blog is a forum for just that.  In fact, it’s my forum for just that.  I’m trying to work it out for myself & to possibly get some insight from other local (and some not so local) musicians.

In fact, I think I have ranted about this very topic online before, maybe just a similar one… but I can’t seem to find it anywhere.

I also don’t want to dismiss the people that come see us at just about every show.  Your presence is incredibly important to us, and we value it.  We just want some more people there to watch with you, and we don’t want things to get stale where you’re seeing the same show over & over.  Even if you’ve only caught us once, or if you’ve bought a T-shirt, or told us you liked a video online… you are awesome and we truly appreciate your support & attendance.

I recently saw the worst case ever of this crazy only-watch-the-band-with-a-guy-I-know-in-it thing going on.  We played a show where people watched the band they came to see, then just absolutely bailed.  Not even the bands stuck around to check out the other acts, one of which was a touring act & the reason we were all playing the show.  It’s disrespectful.  I get that stuff comes up, & sometimes you need to go.  It happens.  Sometimes there’s burnout.  Sometimes there’s arrogance.  Sometimes there are good reasons.  Sometimes you’re just being ignorant.

I know personally that a bunch of people from my wife’s family came out to a show at a bar once where my wife & I absolutely love the wings.  We had told everyone how cool the place was, they all decided to come to the ‘Burgh to eat some legendary wings & watch my band play… killing 2 birds with one stone.  They sat through one band that everyone liked, then through a 2nd band that was just absolutely awful… one member was so drunk and/or high that he would strum the guitar and look down at it dazed for a minute or so while apparently hearing stuff that none of the rest of us could.  This was all endured just to see us play.  The place was packed all night, the bands & their fans watched each other, and everyone had a good time.

Not to judge a book by its cover, but I all kinds of judged books by their covers the other night and I hit the nail on the proverbial head.  A quick scan of the room revealed some crazy demographics.  More specifically a bunch of old people trying to look cool and standing on tippy-toes watching their kid play with no general comprehension of what was going on up on the stage or around them.  If I’m calling them old, you know they were old.  We knew these were parents, aunts, uncles, and neighbors… and they were going to split as soon as their kid’s bands was done.  Boy, did they ever.  If it was a cartoon, there would have been a cloud of dust & a cartoon noise.  Whoop!

It must be happening everywhere because the touring band had it written into their contract that they weren’t to be slated to play last on any of their shows.  You can’t blame them.  You tour to build support for your album, and if no one sees you play, no one’s going to buy your album or you merch or come see you the next time you roll through town.  We took the cleanup/closer spot because none of the other bands would.

Do you know what it's like to be on the bill and to play for fifteen minutes and the only people there to see you are the other bands and their girlfriends? Don't talk to ME about Rock n' Roll!  I'm out there in the clubs and on the streets and I'm living it!  I AM ROCK N' ROLL!

Do you know what it's like to be on the bill and to play for fifteen minutes and the only people there to see you are the other bands and their girlfriends? Don't talk to me about Rock n' Roll! I'm out there in the clubs and on the streets and I'm living it! I AM ROCK N' ROLL!

We didn’t help their cause because we apparently weren’t a draw either.  We watched the touring band, & they watched us.  The handful of people that came to see us were there for all of the sets that night… and the show started an hour or so later than it was supposed to.  It was awesome that the touring band actually stuck around to see us play.  I’m sure on the road they’ve seen crappy band upon crappy band night after night… but it was an unparalleled show of respect for us, and assured us that the sound guy & doorman had to stick around until we were done.  Ha ha.

My boyfriend's lame-ass band... live at the Radisson

Playing their new hit, ''Girl Girl Girl''!

Well, there were more people there to watch us… since it was a rare all-ages gig for us, we had an under-ager and her mom eager to see us… we were told we’d be rocking about 8:00pm.  We eventually went on much much later, way past the under-ager’s bed time.  So, two people who bought tickets & came out expressly to see us had to leave early and were unable to see us because of all the ridiculousness and shuffling.  Then the dozens of people who came out to see the other bands watched them then left.  Immediately.

The Sitter

Try as he might, Jeremy could just not meditate in front of a stereo. Live music is the only way to go.

It would be nice to say that whoever sold the most tickets had to go last… but then again, they did sell a lot of tickets, so that has a certain amount of pull as far as when you want to go on.

I didn’t hear any of the opening bands even mention the touring band… the headlining band that (again) we were supposed to be there in support of.

Before you say that my band sucks (you’re certainly entitled to your opinion), I’ll say that no one who left early would know, because they didn’t even give us a chance.  I’d rather clear the room myself than have it cleared for me.  How do you expose people to your live show, if the people in the place don’t even stick around for one song?

So, what are you thankful for?


OK, I do a lot of goofy stuff here on the blog.  I tend to rant about things, as this forum lends itself easily to that.  Hopefully those of you that know me IRL know I’m not always a grumbly curmudgeon.  I use ranting as humor, not as a way of life.

Tonight as this posts, we’ll be cleaning up the clutter, we’ve already chopped the bread for stuffing, and we’re probably prepping the turkey… but let’s not forget what’s important this time of year; It’s a great time to take stock of things, and be thankful for all that we have.  You can thank a higher power, karma, yourself, or other people in your life who have helped or influenced you.  When I think about it, I have a lot of things to be thankful for.  As you get ready for the holiday crunch, anticipated gatherings, getting the place clean or packing the car for a road trip… think about what you’re thankful for.  Pardon my foray into the mushy.

A wife that puts up with my shenanigans.  We can be goofy together, and it makes life fun.  We have different points of view on pretty much everything, so we’re always (OK, most of the time) looking at things from more than one perspective.  She supports my Batman and Star Wars obsessions, and I hate to say I’ve learned to like Glee.  That’s how we roll.

A big family.  I’m an only child, but I’m always surrounded by & get along well with my extended family… now extended to my wife’s family since they’re all also close-knit.  I’m thankful that things like Facebook exist to keep us all in contact.  I’m not a phone person, but I can do FB to keep tabs on the fam.  I’m thankful that when we get together at Grandma’s this year, we’ll be throwing dinner rolls across the dining room at each other, and discussing wildly inappropriate things at the dinner table.

A band that is pretty ridiculous.  It’s cool to have a band that’s relaxed, and seems to get things done.  I have fun playing, and I hope people have fun listening and watching.  For me, it’s a creative outlet that can’t be matched.  To have the opportunity to write stuff, gig out, and now to get an “actual” album pressed & produced is a big deal to me.  When I say relaxed, I don’t meant to convey that a lot of effort doesn’t go into what we do… it’s just that we don’t stress about it.  It’s difficult to find a group of people on compatible levels of taste, work ethic, stage presence, talent, and most of all personality.  I think we have this one right.

Friends for the long-haul.  I know a lot of cool people.  I’ve met them through camp, church, rocking out with various bands, jobs, and all even these things that we used to call “message boards” back in the 1900’s.  There are friends I see often, some I see less so, but I think we’re all solid on where we stand, no matter the time interval that passes between hanging out & catching up.  You know who you are.

That’s just a few of the plethora of things I have to be thankful for… without even getting into material possessions, and resisting the urge to be a smart-ass.

Maybe I’ll add some more in the comments or another blog later.

What are you thankful for?  (Real sentiments and smart-assedness encouraged.)

And now, the stuffing…

And now, the stuffing…