Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

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Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Food Allergy Walk Pittsburgh 2016 (Asking for a $10 donation.)


It’s almost time for the FARE food allergy walk in Pittsburgh again this year.  Each year, I ask for your help before the walk in raising money for food allergy research & awareness/education.  This year the walk will be on Sunday October 2nd at the Pittsburgh Zoo.

I know money is tight.  I know there are a million causes worth donating to.  I know there are walks for everything these days.  So, I understand what I’m asking when I ask you to consider a donation to FARE in support of our walk.

My shellfish allergy is pretty severe, but I have learned to navigate life successfully with it.  It would be nice for people to not have to worry about these things some day.  Molly has recently outgrown an allergy to eggs, greatly in part to incredible pediatricians, local allergists involved in the FARE walk, and their advice as it is informed by the latest research and techniques.  There is still a chance that either of my kids could develop allergies later.  My shellfish allergy didn’t really manifest until I was in 3rd or 4th grade.

My plea isn’t the standard. I know not everyone has $50 or even $25 to give to a cause that may not even affect their lives directly.  I’m asking for $10 to go to FARE (Food Allergy Research & Education).  I’d rather get a bunch of small donations from a whole lot of people.

This is how my friends/followers/whatever break down on social media, and what the total would amount to if everyone managed to donate $10:

All of those except Tumblr are well over our team goal of $600.  All of them total would be $28,570.00.  I know there’s some obvious overlap, so that’s not a real number if everyone only donated $10, but it’s also not ridiculous.

Donations are tax deductible, you can opt for a receipt when you donate online, and you can read about what your donation will be used for.

If you’re reading this and don’t have $10 to spare, or your donation money is going to a cause closer to your heart, that’s cool too.  Just reading raises awareness and that is also extremely important.  You can find all kinds of food-allergy related rants and information here on my blog.  Sharing on your social media platform of choice would be really cool too.

FARE Walk For Food Allergy 2016 - Carroll Family Team Page

FARE Walk For Food Allergy 2016 – Carroll Family Team Page

Thank you for your time and your consideration.

Kyle Dine and Friends | DVD Review


I posted a review of Kyle Dine’s DVD on Amazon, and wanted to share it here…

Kyle Dine is an incredibly talented and extremely creative children’s entertainer.  He also wields the utmost authority on living life while coping with food allergies as he has multiple food allergies himself and is a successful world-travelled musical educator.

These expertly crafted videos are full of incredibly fun and catchy age-appropriate songs and lessons about having food allergies.  How to avoid your trigger foods, hand washing, always carrying your auto-injector, and how to quickly reach out for help if necessary are just some of the topics not only touched upon but driven home by Kyle and his puppet friends.  

As an adult with a severe food allergy I am so glad that this type of resource is available for the ever-growing “club” of the food allergic.  As a parent of a child with food allergies, this is an invaluable tool to help teach a toddler turning into a pre-schooler about the importance of not eating food unless it’s OK’d by mommy or daddy, and for her to let us know immediately if she is having a reaction.  Luckily she loves to wash her hands, so we’ve got that covered.  These lessons are delivered in the fine tradition of children’s programming like Sesame Street or Mr. Rogers, and they work.  Both of my kids were moving to the music upon our first viewing!

I not only recommend this for food allergy families, but I would say that extended family who may not understand food allergies, your child’s friends and their parents, and organizations like schools, churches, camps, & clubs could all benefit from the knowledge and entertainment provided by this set of DVD’s.  This programming ought to play on constant rotation in your family’s pediatric allergist’s office waiting room.

This can and will serve as an incredibly fun way to open the door to creating a fun, safe, and confident approach to living with food allergies.

Kyle Dine & Friends: Allergy Awareness with Songs, Puppets, and Games

Kyle Dine & Friends

 

Share your food allergy story to help a student [from Allergy Eats]


Allergy Eats Logo

Share your food allergy story to help a student

I haven’t posted about food allergies in a while.  I guess nothing has “set me off”. I guess that’s a good thing, right?  This is a good share though… You can help spread Food Allergy Awareness by helping this student put together a presentation for her sociology class using your stories.

This was the initial message to Paul at Allergy Eats:

Hey Paul,

I’m doing a presentation in my sociology class about the social impact and quality of life of food allergies on children, teens, and young adults. I was wondering if you could put on the website a place where people could talk about the impact FA have on them and/or their children? I’m also looking for how it impacts the family members and close friends of the FA individual.

Thanks!

You can get more details on how to share your story here: Share your food allergy story to help a student

I’m sure that any & all help is appreciated.  Even though I’m too old f=to even qualify for “young adult” any more, I shared a link to my “background” blog post and the more recent humorous graphPlease, share your story & share this link!

Hopefully the presentation can be posted online when finished, and we can all benefit from that much more food allergy awareness.