Thank you to our #FoodAllergy allies!


I’d like to once again say thank you from the whole family to everyone who took the time to spread the word, and especially those who were able to make a donation to support us in the Pittsburgh FARE Walk for Food Allergy this year!

FARE Walk for Food Allergy 2016 - Pittsburgh, PA

FARE Walk for Food Allergy 2016 – Pittsburgh, PA

We had a great day with so many others affected in some way by a food allergy or multiple food allergies.  It’s really nice to know that we’re not alone, and that we all have the support of family and friends to enable us to get to the walk and work to make a difference in all of our lives.

Upon arrival, we did many things in a special event tent before the opening ceremony.  Several “top-8-free” food samples & small toys were handed out.  The kids colored some food allergy related pictures, decorated some foam teal pumpkins, made a beaded necklace & bracelet (Ian even threaded some beads all by himself!), danced with a DJ, played with masks in a photo booth, and just mingled with people who “get” it.

Molly also had an EMT help her wrap “Miss Daisy” (a stuffed bunny/dog/thing that was Bethany’s when she was little) in some gauze bandages, apply  a regular band-aid, and administer a practice EpiPen auto-injector with the Teddy Bear Clinic.  She did really good!  She may need to help me or any of her friends some day.

We listened to a speech by that very same brave young lady about her struggles she has had as someone with 15 allergies that can all lead to anaphylaxis.  More important than the struggles are the many things she has learned to overcome, the incredible friends she has made, and how well she has learned to adapt while moving away from home and going to school at Pitt.  She has used an EpiPen, and it has saved her life.  She leads a normal active life and is dedicating it to service to others by being an EMT!

Along our walk, there were many food allergy facts on signs throughout the zoo.  We used them to start conversations with the kids about how Molly has outgrown her allergy to eggs, how I will not outgrow mine, and how they will probably have a few friends in school with food allergies and that they need to be good friends to those kids and help them avoid their allergens and get the proper help quickly if needed!

It’s amazing that last year Molly knew at 2 years old to ask if a food item contained things like eggs, mayonnaise, or ranch dressing.  She understands now that daddy can’t eat shellfish.  She even pointed out the (incredibly creepy spiny) lobsters in the aquarium & said “You can’t eat that.”  I know Ian is a bit young to understand, but I don’t think it hurts to throw all the information out there and see what eventually sticks.

In the zoo, we had the incredible opportunity to get a photo with Victoria the elephant, pet (and get liked by) a deer, and pet some goats and sheep.  Ian loved the peacock roaming around, and I think he almost touched him.  Ha ha.  We also talked about how similar yet different Butterscotch is to all the big cats among many other animal facts that we have read  in books & on the signage there in the park.

You can check out more photos on my Facebook or Instagram, or Bethany’s Facebook.

Teach your kids not to be @$$holes about food allergies.


You need to read this:

Now.

Dig it?

On the “Super-Cool Food Allergy News” front, FARE has said they will not accept donations from Mylan until this Epi-Pen price-gouging shenanigans is resolved.  That makes me feel a lot better about asking for your donations for the upcoming Food Allergy walk in Pittsburgh.  It’s a little less messy.

As the linked article proves, we still need awareness.  We still need education.  We still need advocacy.  We still need research.  We still need a cure.  That is what all of your donations go to.

Don’t be ridiculous.


Seriously.

Epi-Pen Shenanigans.


I was going to write a blog about;

But, if you’re interested (even mildly), you have already read those things and made up your own mind.

My initial reaction was to pull out of the FARE walk for Food Allergy due to Mylan’s sponsorship.  But, that won’t do anyone any good.  We still need research.  We still need advocacy.  We still need awareness.  We still need a cure.

I have to trust that in the midst of public outcry, Bresch will be held to task.  I can hope that the rest of the good people at Mylan don’t suffer.  I currently refuse to revel in the failures of others, even if it is at their own hand.

I again would like to ask for donations to this year’s food allergy walk, and I will once again participate in the Teal Pumpkin Project this Halloween.

People like me need your help.

Epi-Pens in a Skull Glass

Don’t let Mylan’s issues prevent you from helping food allergy research, education, and advocacy.

_OOD ALLERGIES - Let's kick the F out of food allergies

Food Allergy Walk Pittsburgh 2016 (Asking for a $10 donation.)


It’s almost time for the FARE food allergy walk in Pittsburgh again this year.  Each year, I ask for your help before the walk in raising money for food allergy research & awareness/education.  This year the walk will be on Sunday October 2nd at the Pittsburgh Zoo.

I know money is tight.  I know there are a million causes worth donating to.  I know there are walks for everything these days.  So, I understand what I’m asking when I ask you to consider a donation to FARE in support of our walk.

My shellfish allergy is pretty severe, but I have learned to navigate life successfully with it.  It would be nice for people to not have to worry about these things some day.  Molly has recently outgrown an allergy to eggs, greatly in part to incredible pediatricians, local allergists involved in the FARE walk, and their advice as it is informed by the latest research and techniques.  There is still a chance that either of my kids could develop allergies later.  My shellfish allergy didn’t really manifest until I was in 3rd or 4th grade.

My plea isn’t the standard. I know not everyone has $50 or even $25 to give to a cause that may not even affect their lives directly.  I’m asking for $10 to go to FARE (Food Allergy Research & Education).  I’d rather get a bunch of small donations from a whole lot of people.

This is how my friends/followers/whatever break down on social media, and what the total would amount to if everyone managed to donate $10:

All of those except Tumblr are well over our team goal of $600.  All of them total would be $28,570.00.  I know there’s some obvious overlap, so that’s not a real number if everyone only donated $10, but it’s also not ridiculous.

Donations are tax deductible, you can opt for a receipt when you donate online, and you can read about what your donation will be used for.

If you’re reading this and don’t have $10 to spare, or your donation money is going to a cause closer to your heart, that’s cool too.  Just reading raises awareness and that is also extremely important.  You can find all kinds of food-allergy related rants and information here on my blog.  Sharing on your social media platform of choice would be really cool too.

FARE Walk For Food Allergy 2016 - Carroll Family Team Page

FARE Walk For Food Allergy 2016 – Carroll Family Team Page

Thank you for your time and your consideration.

Message from FAI and Research America – Food allergy action required!


From: Food Allergy Initiative <info@faiusa.org>
To: Me <me@my.email.address>
Sent: Tuesday, July 19, 2011 12:30 PM
Subject: Message from FAI & Research America

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Finding a cure for life-threatening food allergies. July 19, 2011
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Write Your Congressman Today!
girl with flag
Fight for the Future of Medical Research!
Dear Friend,FAI has joined forces with Research!America, the nation’s largest nonprofit advocacy alliance committed to making health research a higher national priority. We’re fighting for strong, continuing support for life-saving research at the NIH.
Please join us today by writing your elected officials. You’ll find two letters on our site. The first allows you to voice your support for food allergy research, and the second, provided by Research America, allows you to voice your opposition to budget cuts at NIH.
A strong government-private partnership is the key to finding a cure for food allergies. We’ve worked too hard and come too far to fail now. As the world’s largest source of private funding for food allergy research, FAI urges you to write your elected officials today. Millons of Americans–including 12 million food allergy sufferers–are counting on us.
Sincerely,
Mary Jane Marchisotto
Executive Director, FAI
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Our Mission

FAI supports research to find a cure for life-threatening food allergies; clinical activities to improve diagnosis and treatment; public policy to increase federal funding for research and create safer environments for those afflicted; and educational programs to make the hospitality industry, schools, day care centers, and camps safer.

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Food Allergy Initiative 515 Madison Avenue, Suite 1912 | New York, NY 10022-5403
Phone: 855-FAI-9604 | Fax: 917-338-5130 | info
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Copyright © 2011 Food Allergy Initiative. All Rights Reserved.

Our weekend of dining in PA Dutch country


Well, if you’ve been keeping up, you read about my plan for our trip, what we did on our trip, and maybe even the email from the Amish Village owner.  This one’s all about the food.  We ate a lot while we were out that way, but we didn’t hit the regular buffet/smörgåsbord places like Miller’s or Dienner’s.

If you’re reading this, you probably already know about my shellfish allergy.  Buffets can be a nightmare for someone like me… not only do I have to worry about cross-contamination in the kitchen (like on shared cooking surfaces, utensils, or fryers), but I have to worry about my fellow slovenly patrons carelessly flinging bits of deathfish on to adjacent foods, or better yet inadvertently dropping some off of their plate while at a different table.  No thank you.  No worries though, with the internet I was able to do a lot of research ahead of time on shellfish-free and allergy friendly restaurants.

FOOD

Prince Street Café
Prince Street Cafe on Urbanspoon Prince Street Cafe on Allergy Eats Prince Street Cafe on Facebook Twitter | @PrinceStCafe

Classic Breakfast Sandwich on Ciabatta

Classic Breakfast Sandwich on Ciabatta

The continental breakfast at the Super 8 in Lancaster was lacking, so we decided to check out the Prince Street Cafe first thing on Saturday morning.  We were quite glad that we did!  I had an email exchange going on before our trip with the manager that put me totally at ease.  I noticed there was no shellfish on their menu, but I emailed them to be sure.  It ends up that they do occasionally have a seafood soup and it would be in-house while we were there, but I wasn’t worried about the cross-contamination there after hearing how it was prepared and seeing that they acknowledged food allergies on their menu by offering gluten-free and nut-free options.  I can’t stress enough what a relief & pleasure this type of email exchange was.

The place was packed and we got there shortly after 9:00am.  The line before us went quickly & there were thankfully menus posted prominently in two places near to where you order.  My wife & I both chose the classic breakfast sandwich on ciabatta, I opted for the addition of bacon.  I also had an iced tea, and added some honey which was available on the counter… which made it absolutely perfect.  The sandwiches were great, the eggs were cooked perfectly (by a microwave of all things, I think), the cheese was beautifully melted & the ciabatta was nice & fresh.  I dug the nice slab ‘o bacon too, it didn’t overpower the sandwich.

All-in-all, this seemed like a great place to hang out.  The employees were friendly, there was a really diverse crowd, it was very relaxing.  We’ll definitely be back next time we’re in the area, perhaps for a lunch or even just some coffee.

Jakey’s Amish BBQ
Jakey's Amish BBQ on Urbanspoon Jakey's Amish BBQ on Allergy Eats Jakey's Amish BBQ on Facebook

Turkey Sandwich w/ Mild BBQ Sauce

Turkey Sandwich w/ Mild BBQ Sauce

I hadn’t  seeked-out Jakey’s before our trip.  I did find a business-card sized ad in the giant tourist brochure display wall in our hotel.  I saw the word BBQ, and it was all over.  I mean, I do love BBQ.  I did find a menu online before going in, and again no deathfish, but I did do the usual awkward asking if there is/was every any shellfish prepared there before ordering & after looking over the menu.  After a no from the waitress, a confused look, then a double-check with someone in the back, we were good.  My problem in general with BBQ joints is that I want everything.  Thankfully they usually have sampler or at least combo platters.

Since we were there for lunch though, and doing some touristy running-around, I came to the sad realization that I shouldn’t fill up on BBQ.  I opted for the barbecue turkey sandwich with the mild sauce, and my wife went for the chicken sandwich.  Sadly, you don’t see a lot of turkey BBQ ’round the ‘Burgh… so I was glad to have that as a choice.  I had a side of fries, & Bethany got the macaroni salad.  My sandwich was delicious.  The turkey was nice & juicy, and there wasn’t so much sauce that you couldn’t appreciate the taste of the meat.  I did grab the spicy BBQ sauce that was provided on the table… for the sandwich & for some french fry dipping.  It wasn’t really all that hot for being the “spicy” sauce, but it was really good.  I’d like to try the other meats & the Carolina-style sauce…  Maybe some corn fritters instead of the fries?  We’ll be through again when we’re back that way!

Added bonus, it had a real BBQ joint kind of vibe… it shared space with a T-shirt shop that sold all kinds of stuff, from religious to raunchy.  The tables had that red & white checkered pattern tablecloth, and there were while plastic outdoor type chairs.  The guy behind the counter who I must assume was the owner or at least a manager was very cool to his employees who seemed new, telling them they were doing a good job.  He even sent out extra fries for us, apparently there weren’t enough on my plate when it came out!  Ha ha.  Our waitress did quite well, especially if she was new.  The order was correct, quick, and we had sweet tea refills without even asking.  Add this place to my list of favorite BBQ joints!

Stoltzfus Farm Resaurant
Stoltzfus Farm Restaurant on Urbanspoon Stoltzfus Farm Restaurant on Allergy Eats Stoltzfus Farm Restaurant on Facebook

Family-Style Meal

Family-Style Meal

Now, this place was just incredible.  Again, I checked out the menu online beforehand, and asked the hostess about shellfish when we arrived.  No deathfish in sight (or hidden in the kitchen), so I was good to go.  It looks like a  quaint little farmhouse with a beautiful garden on the outside, and once inside it doesn’t really lose that farmhouse appeal.  We were seated in a room off to the side with smaller tables, as large tables filled the front room (& I believe around back) and were full of mostly families with a bunch of children.  Our waitress could have played Granny in the Tweetie & Sylvester cartoons if they were to be made into a live action film.

On the way in the door, you opt in for (& pay for) the buffet, and then if you make it through that, you can order desserts à la carte.  We didn’t make it to dessert.  Why?  Well, they managed to stuff me full of literally everything on the menu.  I actually had everything too.  It was quite comforting to not have to worry about any cross-contamination or hidden ingredients… and it helped that everything tasted perfect.  first they brought out applesauce, pepper cabbage (a kind of cole slaw with red bell peppers & a vinegar dressing), chow-chow, and apple butter w/ white & wheat bread.  It was my first time trying chow-chow, and I loved it.  It tasted like bread n’ butter pickles, but was a mixture of cauliflower, carrots, green beans, cucumbers (pickles), kidney beans, and maybe peppers and onions?  Next, she brought out everything else…  Fried chicken, sausage, hamloaf, green beans, corn, buttered noodles, potato stuffing (I’ve heard it called potato filling), & sweet potatoes.  All their meat comes from Stoltzfus Meats, right next door.  The fried chicken was excellent, the breading was perfect & the chicken itself was delicious & succulent.  I could eat potato stuffing all day… I mean carbs + carbs, covered in carb-filled gravy?  Yes please.

I could go on, but you get the point.  If you catch me on a craving & a free day… I just might drive out there to get a meal & come right home.  It would be worth the drive!  I wish I had room for the tapioca pudding.

Wawa
Wawa on Urbanspoon Wawa on Facebook Twitter | @gottahava

Steak & Egg on 6" Ciabatta

Steak & Egg on 6" Ciabatta

It’s odd mentioning it with the other places, but we did eat breakfast there.  I’m from the other side of the state where we have Sheetz & Get·Go… so of course I had to try a Wawa.  I’m a huge Sheetz fan, and had it in my head that I already liked Sheetz better.  I may be wrong.  The girl that made our sandwiches was really friendly, and offered to help us with the touch screen if we needed it.  (We must have appeared to be n00bz while we were blipping through checking out the entire menu.

My sandwich not only ridiculously large, but they eggs were really fluffy.  I think the menu said something about them containing cheese?  Whatever they do with them, it works for me.  I got a steak egg & cheese sandwich and it was delicious.  Wawa has the same problem as Sheetz & Get·Go as far as wrapping sandwiches though.  No matter where I get touch-screen gas station food, there’s always more sauce/ketchup/dressing on the outside of the bun than the inside.  You’d think that someone would have come up with a solution for that by now.  Perhaps it’s a tie.  Maybe Sheetz is still my favorite.  It’s pretty close though.  (Luckily, there was no deathfish on the menu, so it’s a safe place for me if not classy.  Ha ha.)

Strasburg Railroad Trackside Café
Strasburg Rail Road - Trackside Café on Urbanspoon Strasburg Railroad on Facebook Twitter | @StrasburgRR

Turkey sandwich, hamburger, & fries...

Turkey sandwich, hamburger, & fries.

We stopped here to get some lunch after the first train ride of the day at the Strasburg Railroad.  It was an OK cafeteria-style kind of joint, sadly cash only.  I checked out the menu when we got in there, & did ask if they ever cooked shellfish.  I was told they didn’t & felt safe.  I got a turkey sandwich & Bethany got a burger, and we shared some fries.  My sandwich was pretty good… but Bethany wasn’t a big fan of the burger.  The fries seemed a little old for some reason.  I think we both wished we had just went back to Jakey’s.  Ha ha.

Overall though, I guess we got what we paid for, it was a nice cheap quick & convenient lunch.  I did like the fact that they had up signs warning about the use of peanut oil for those with peanut allergies.  For a family attraction & with food allergies on the rise, this is a responsible thing for a business to do.

Splits & Giggles
Splits & Giggles on Urbanspoon Splits & Giggles on Allergy Eats Splits & Giggles on Facebook Twitter | @splitsngiggles
First off, best name ever for an ice cream shop.  Secondly, the guys that own & run the place are very cool.  I also can’t believe I didn’t pause to take a photo of the ice cream.  This was another place that I had scouted-out beforehand, and found through either Urbanspoon or Allergy Eats.  I saw that their menu was devoid of deathfish, so I sent the now standard just-to-be-sure email.  They had a soup containing seafood, but it hasn’t been in-house for a while… so I was safe.  These guys were really cool via email, and even dropped me a line about special hours for that Sunday when they noticed I didn’t stop in on Saturday.

I was hoping to make it there for a lunch or light dinner topped off with some ice cream, but as it happened we were heading home well after lunch & way before dinner, so we decided to ruin dinner & just have some ice cream.  It was a good call.  I had a hot fudge sundae in a waffle bowl, and Bethany went for rocky-road in a pretzel cone.  The ice cream was great, and the place was really cool.  It had a nice neighborhood vibe.  They even took a bowl of water out for some customers who were outside eating some ice cream whit their dog.  Next time we’re in the area, I’d like to get in & try one of their panini sandwiches.  They get bonus points for the line “Please alert us of ANY food allergies or concerns you have before ordering.” on their menu.

FOOD

Well, that was all of our meals while on our road trip.  I won’t include the Hardee’s that we hit on the way home…  it’s probably best for them if I don’t comment.

Ever been to any of these places?  Let me know what you think!